Recovery

Janet, A Success Story. June 15. #TSJ Singing in the Sun Video

Today was very relaxing for Janet and I as we continue to prepare for Ottawa. There was no problem waking up at 9am Eastern Time although it was a little weird to actually be up before others in the neighbourhood. I let Janet use her wheelchair a lot this morning so she could get around and help with things easier and also so I could get my bike ride in. She happily listened to a Stuart McLean story while I was gone and gave me a good recap of it when I got back.

In trying to stay on Eastern Time, dinner was real early for us tonight but one big benefit was our patio table was still soaked in sunshine when we were ready to eat and that made the meal even more enjoyable. The fun continued after as we relaxed in the sun. I can’t describe how positive that is for Janet, she literally soaks up the warmth and is fuelled by it. I sneak shot this video as she sang along to The Swon Brothers version of Danny’s Song. It may not mean much to all of you but if you watch closely, especially at the end where Janet closes her eyes and drinks in the sun, you may get a sense of why I love her so much.

Feeling totally blessed.

Janet, A Success Story. June 14. #TSJ

This pretending to change time zone thing is not that easy, especially trying to tie it into Janet’s nap time and regular bedtime. If she’s not tired she can’t sleep. We are making progress on it though and hope to be on Eastern Time tomorrow.

Today was fairly routine save for one big moment this evening. The morning consisted of Miss Independent making her breakfast then having a bit of a giggle session with her mom on Skype. Then the work began. At risk of being old and prepared way too soon, we started packing. It feels like we are forgetting something already as Janet is packed in a very small suitcase and I’m not using my largest one either. Seems odd but good if it works.

Nash was on a sleep over with our friend Annie, who is going to look after him while we’re gone and we made a quick trip to pick him up. He was OK with coming home but seemed very comfortable at Annie’s house too. We went without the wheelchair and Janet did some nice walking up a large ramp to the front door of the building.

Nap time was a little early with the time change but Janet didn’t protest, she just didn’t sleep that long. The sun was shining bright when she woke so I plunked her out in it for forty five minutes while I made our early dinner. All warmed up and fed we headed out to church where I helped Janet walk all the way to the door to the auditorium. I then challenged her to walk down the aisle to our seats. This time there was resistance but she caved in quickly and for the first time walked freestyle all the way down the aisle and right into her seat! Outstanding!

As we continue to pretend its later than it really is we had dessert after church instead of dinner while watching some touching and amazing stories and performances on America’s Got Talent. A reluctant Janet was in bed at 9:30 real time, 11:30 pretend, saying she would not go to sleep, she’s snoring as I write.

Praying for a fun and productive Sunday on Eastern Time.

Janet, A Success Story. June 13. #TSJ

Friday the thirteenth turned out to be pretty “lucky” for us. Janet was awake fairly early so was able to have a shower. I tried having her get her breakfast while walking about the kitchen but that seemed a little too much yet. She was willing to try at least.

After running through our clothes for the trip we agreed there were a few things we both could use so we took advantage of the rain and went to the mall. Janet was very excited that we both found the things we went there for in relatively quick fashion. By the time we were home Janet had done a lot of walking and helping out so I made her a sandwich while we watched a little World Cup soccer.

Dinner tonight was a special evening out with our neighbours, Bonnie and Toly. We had hoped to walk the two blocks to The Fixx Cafe but the weather didn’t cooperate so we drove and Janet walked well through the parking lot and negotiated a three inch curb very nicely. She also gobbled up her dinner pretty quick saying it was “delicious”. That’s high praise from Janet.

Twice today I had Janet doing assisted walking in public places and each time she did so with lots of confidence. Not long ago you would get some resistance to the idea or at least a lot of looking around for who is watching. Not today, and that makes it more fun.

We are easing into running on Eastern Time so our clocks are on Alberta time tonight and we’ll switch to Central Time tomorrow and hopefully be on Eastern Time for Monday so that it’s not a big shock when we arrive in Ottawa Tuesday. I want Janet to be able to enjoy every minute she’s there.

Praying for a good night of sleep and a productive Saturday.

Janet, A Success Story. June 12. #TSJ Home for a holiday.

And so it begins. Janet is home for the next ten nights, five here then five in Ottawa, and she is very excited. It was a good day of transition for her as she did an express version of her gym routine this morning then went with the rest of the house to a park in Vernon for a picnic lunch. She has a little trouble in figuring out what to wear for outings like that and ended up over dressed for what was a warm day even though it looked cool.

The "ducky" weather is coming.

The “ducky” weather is coming.

Getting a head start on nap time.

Getting a head start on nap time.

We packed Janet up after a brief nap and drove to her doctor’s for one last round of power washing her ears. Our car went through a power wash on the way as we hit a massive thunderstorm with some of the heaviest rain I’ve ever seen. Janet was actually a little nervous about it but by the time we hit Kelowna proper it was like it hadn’t rained at all. That’s why we live here folks.

Janet was very brave at the doctor’s and her ears are now squeaky clean. My plan for her at home and on the trip to Ottawa is to do as much walking as possible and use the wheelchair only when necessary. That began nicely as soon as we got home. Janet walked in from the car to the bathroom then out to the kitchen where she chopped veggies on her own for dinner. She seems to be at a perfect height sitting in a real chair at the island for chopping and stirring. Janet did an awesome job tonight and rewarded herself with a glass of wine with dinner.

I thought if we went for an after dinner walk we might see some of the neighbours but our after dinner is closer to a lot of folk’s bedtime around here so no one was out. It was nice to get some air before watching So You Think You Can Dance. Janet made some really intelligent remarks during the show and overall is showing more improvement in the memory and awareness department. Her walking tonight was solid and she did all of her nighttime stuff in the bathroom unassisted, with no wheelchair.

Praying for a great night of sleep and a productive Friday.

Janet, A Success Story. June 11. #TSJ

Nap time was late for Janet today. She called me at 2:40 to say she’d finished her workout and was going for a nap. There was no particular reason for being so late and she didn’t even do all of her gym activities, everything just took a long time to get done. There was an opportunity to go sailing this morning but Janet turned it down thinking she’d only have to do all her other stuff later in the day. When I explained its OK to do different things once in a while and not do every single regular activity, a light seemed to come on, so maybe next time she’ll say yes.

Janet was ready to get up when I arrived and she asked to get her bike ride over with. The walk to the gym was not Janet’s best but she did it then put in a really good bike ride. The walk back was better but she still seemed a little off so I let her hold my hand all the way to her room then down for dinner. Seeming a little off was an understatement after dinner. Janet’s chore of the day was to empty the sanitizer and put away the dishes. Last time she did this it went really well, tonight she got it done but under major protest and with a couple pretty good meltdowns. Not sure why, but it seemed like her confidence level was way down and her balance a little off. Her right leg action appeared to be coming much more from her hip than usual too. The freestyle walking trip to get her meds at the end of the evening was pretty good so I’m putting it all down to a bad day and hope that a more relaxed day tomorrow will rejuvenate her.

Since its Janet’s birthday next week and Humberto’s on Sunday the house is having a picnic for them in Vernon tomorrow. Janet doesn’t think it’ll be fun but I know Jess made a carrot cake for her so that at least is one good thing.

Praying that Janet has a solid night of healing sleep and wakes up tomorrow with a positive attitude and a willingness to fully participate in everything she’s asked to do.

Janet, A Success Story. June 10. #TSJ

Thankfully, Janet slept well last night and is no longer experiencing any ear pain. Her gym activities went well this morning and she was in good spirits when she called me while in the Standing Frame.

I tried to go to Connect a little later than usual but find it hard to do that and got there with Janet still napping. I lay down beside her and twenty minutes later she woke up looking at me and said “that was a nice idea”, followed by a bunch of mumbled words. When she really woke up a few seconds later she acknowledged she had been dreaming. I’ve asked Janet a few times during her recovery if she had dreamt at all and her answer has always been no. I’ve heard her talking in her sleep and am not sure if that’s connected so today will be noted as Janet’s first dream and I’m thrilled to report that it involved the entire family on a cruise somewhere sunny and warm, possibly Hawaii. There’s hope yet!

As soon as Janet was up she walked freestyle down to the kitchen to ask what her house chore was to be today. Chelsea assigned her dusting duties and Janet walked a lap of the living room with a feather duster as I coached her on where to stand in order to reach everything. She did a great job and was justifiably tired when she got back to her room. I’d say she was on her feet with no assistance for a good half hour. In light of that I helped her walk down to dinner going as fast as she could without tripping over herself. If I have to help her I’m going to make sure she’s going fast each time so she gets that rhythm going better. One negative about her freestyle walking right now is she pauses between steps too long sometimes and doesn’t believe me she’s wasting energy that way. It wouldn’t be so bad if she was putting equal weight on both legs but Janet still favours her left one significantly.

We practiced some reading before walking up to Games Night. Janet put in her best performance yet and actually said “it was kinda fun” after. Her Dilantin levels are in a really good range now and I credit that with some of her cognitive improvements.

Janet enjoyed the chapter of Unbreak My Heart that we read tonight and understood it very clearly and that makes it fun for me to read to her. Praying for another good night of rest and an active Wednesday.

Janet, A Success Story. June 9. #TSJ

There’s never a dull day with Janet. Today was supposed to be a little special in that Janet would be home for dinner after going to the doctor this afternoon. She was quite excited about coming home and we both thought the doctor visit would be one of relief as her ears were to be cleaned out. After getting all of her therapy sessions done by lunchtime, Janet had a quick nap which ended soon after I arrived to pick her up then we took off for the ear cleaning.

Since Janet walked so well the last time we were at the doctor and all we were doing was going home after, we left the wheelchair at Connect. Janet stepped nicely up a three inch curb as we walked into the doctor’s office. The flushing out of the right ear went really well, not so with the left. That was the one most plugged and Janet was in considerable pain as the doctor was shooting water in her ear so she stopped and instructed us to put oil in Janet’s ear for another three days to soften the wax then come back for more pressure washing.

At home, all seemed relatively fine as we sat in the sun for a bit then walked across the grass to see the neighbour’s new deck. Yes, we risked stepping down the huge steps out to our patio and Janet did a solid job. She made it back up with some assistance and was quite pleased she was able to negotiate the steps so well. Janet said her ear hurt a little. She helped me make dinner and enjoyed eating it until her ear started to gradually bother her more and more. I put some oil in it hoping that might soothe the pain, nope. Tylenol didn’t help either nor did ice cream believe it or not. By the time we were driving past the airport on our way back to Connect Janet was actually crying with pain. My thoughts then were to grab her meds and take her to KGH but she then told me she was hearing crackling sounds in her ear. I assured her that was a good thing and when we got to Connect Chelsea came to the rescue. Janet’s doctor cautioned us not to use Q-tips as there is a risk of pushing the wax too far back into the ear. Fair enough but with Janet in pain something had to be done and Chelsea was confident she could get some wax out in order to relieve that pain. Armed with Q-tips and a special ear cleaning probe she went to work and fifteen minutes later Janet was pain free and able to hear better too. Well done Chelsea! The oil treatments will continue and Janet will still go for another round of pressure washing but for now at least it seems like the worst is over.

We did have a brief time to read before I left and Janet was tucked in comfortably with a smile on her face confident she’ll be able to sleep well. God continues to bless us with caring and skilled people and I pray that Janet has a pain free night and a productive Tuesday.

Janet, A Success Story. June 8. #TSJ

There was a lot of sitting around today for Janet, unfortunately, and I’m not sure how we could have avoided it. Breakfast was outside as it was just too nice not to and the only way out there for Janet is in her wheelchair. She stayed outside for a Skype chat with her mom that Janet says was “good and funny”.

I managed to get her doing something other than basking in the sun by suggesting we start the packing process for our trip to Heather and Allan’s wedding. That required her getting some things out of her closet which I suppose she could’ve done walking but I wanted this to be as much her doing it on her own as possible. She picked out some jewellery to wear with each outfit and we got a good sense of what we need to take. Job well done!

Back into the sun we went for lunch, so Janet was sitting again after a short walk on her own. The times she did walk today I kept myself as far from her as I could while staying in range to prevent a fall. Janet seems to walk more confidently when she can see me and moves towards me so I’m going to try and avoid walking beside her as much as I can. Before going for a walk we had a brief Skype chat with Heather to answer some questions that came up during our packing session. She appears to be hanging in there just fine. We almost made it to the beach on our walk but Janet complained of the wind so we turned back. There is nothing worse than a cold Janet.

A very kind Italian lady who lives in our complex cooks a big pasta and meatball dinner for everyone once a year and tonight was the night. Janet of course was less than excited about going but mostly enjoyed being there and talking to some neighbours about tennis and to another couple about Ontario. One of the benefits of living here is the sense of community and I’m glad we can be a part of it. Janet walked into the room tonight leaving her wheelchair parked outside and received lots of “wows” and “look at you” ‘s. Gotta be good for her.

Without any complaints we drove back to Connect and got Janet settled in after she presented Chris with a happy face lolly pop for his fortieth birthday today. That’s one thing I can ask Janet to do and she never hesitates. Praying for a restful night of sleep and a productive Monday.

Janet, A Success Story. June 7. #TSJ

Another independent morning for Janet as she made breakfast, typed an email herself and waited in the sunshine for me while I showered. I still get anxious about her when I leave her in situations like that. She is unable to get back into the house on her own from the patio and I worry a little about her needing to when I’m not available. I finished my shower as quickly as I could and went to check on her, she was singing away to the music I’d left on for her. I need to have more faith.

Its a good thing we were up at a reasonable hour because we had an early lunch date with John. He hasn’t been out for a meal in months and was raring to go as soon as we arrived at his care home. We wheeled the few blocks over to Joey Kelowna and sat outside for a nice leisurely lunch. I didn’t arrange the seating very well so Janet had a hard time hearing John but we managed. I think he really enjoyed getting out and we enjoyed listening to his stories.

With lunch done early Janet agreed to brave the mall as long as we shopped for me not her. She was a big help in colour selection as I actually found clothes that fit me and I managed to sneak a few things in for her too.

After a nice little nap we headed off to church without the wheelchair. After getting out of the car and closing the door unassisted, Janet walked across the parking lot with my help then went by herself the one hundred plus feet to “our” door then demanded my help to walk down to our seats. Janet got lots of encouragement along the way from friends and even people we don’t know. I had to remind her that her story is out there and more people know about her and are cheering her on than she may realize. Walking out of church was similar and took longer as people stopped to chat and encourage and ask about the wedding. Even someone neither of us knows asked Janet if she was ready for the wedding. Kiko walked with us the last little ways to the car and for the first time got to see Janet walking freestyle and even opening the car door unassisted. She is always so encouraging and upbeat, it all made for a very positive evening.

Our time at home tonight was positive as well. We enjoyed some good sushi and the movie Son of God which spurred a good conversation afterwards with Janet feeling touched by the film and glad we saw it soon after church as it helped to see things acted out rather than just spoken about. I guess we were both so immersed in the movie we forgot Janet’s meds until she was tucked into bed. It crossed my mind once during the movie and I thought I’d prompt her during our ice cream break but forgot by then. Oh well.

Praying for a night of deep and healing sleep that helps to bring lots of energy and a sharp mind for tomorrow.

Janet, A Success Story. June 6. #TSJ

Janet’s bonus day at home wasn’t exactly all fun and frolic as she would’ve liked. After breakfast which Janet made all on her own and just before we left she emptied the drier and folded that laundry. She was home alone for that part as I had to retrieve the dog from the groomer. That was the only test we could do for Janet hanging out on her own as the rest of the day was jam packed.

We were out and about for a good two hours with Janet hanging in there nicely, especially at the grocery store. The sunshine made it much more enjoyable to be running around the places we were and Janet was able to go wheelchair free into our financial advisor’s office. He of course was thrilled and impressed to see Janet walking.

Since Janet helped pick out some of the food supplies she felt able to choose something other than grilled cheese for lunch and made herself a nice sandwich and sat in the sun to enjoy it. Trying to go wheelchair free at home is difficult as Janet isn’t strong enough to use the steps out to the patio. We may have to do some work on that.

Tonight was our Small Group meeting and we welcomed one more participant to the discussion. That made a big difference and two hours flew by quickly. Janet participated well despite one stretch where she zoned out a little. Like SheLife, its not really the content that gets Janet going but being able to join in a conversation.

I promised some kayaking pictures and here they are courtesy of Jess.

Ready?

Ready?


Fun?

Fun?

Survived!

Survived!

Praying for a fun Saturday.