Recovery

The Team Save Janet Report is Out! #TSJ #boxingday

Today started a little earlier than others lately as Janet said she didn’t sleep well. I’m not sure how she came to think that as I don’t recall her stirring until very near time to get up. She was talking in her sleep a little just before I turned my light out but that didn’t seem a big deal.

Janet enjoyed breakfast with the kids and a nice Skype chat with Andrew, so all were together for a time. We also Skyped with Leslie a little while later and are grateful for the technology that allows us to talk to and see friends and family whenever we want. Now that those moments are more spontaneous, Janet enjoys them more and therefore, I think, benefits from them more.

To keep up a little with the walking and balancing practice I had Janet try to replicate her dancing efforts from yesterday. The result today was not as spectacular but I was impressed with how well she was able to get her right heel down to the floor. Much better than yesterday and that allowed her to put more weight through her right leg.

Sadly, we dropped Laurel off at the airport this afternoon after a couple of card games with Janet. It was the least emotional airport goodbye I’ve witnessed, I saw no tears, and usually they are flowing fast. Maybe Janet was too tired, or has a better understanding that we will see Laurel again soon, or was just really happy we turned into the airport instead of carrying on to Connect. That will be tomorrow, just for a workout.

The evening was spent dining on make your own pizza and drinking a little more wine as we relaxed with Heather. A movie, It’s Kind of a Funny Story, was about all Janet had the energy for and when we finally found one worth watching I wasn’t convinced she’d last through it. She did, but said after that she didn’t really understand it. I think partly because she was tired and partly because it wasn’t a musical.

Thanking Laurel for all her efforts in making this a very enjoyable Christmas and praying Janet has a solid night of sleep that provides lots of energy for tomorrow.

The Team Save Janet Report is Out! #TSJ #Christmas

A very merry Christmas it was here today. There was no mad rush to the tree to open presents so Janet was able to get up when she wanted and enjoy a leisurely breakfast prepared by Laurel and Heather. Courtney joined us near the end and then we did the presents thing. Janet loves opening stuff but more enjoys seeing others react to what she gave them and although we have scaled things way back it was still a fun time.

The weather was nice enough for a nice walk around the neighbourhood before a late lunch. Janet was having a rather relaxed day up until that point and I thought the fresh air would be good for her. She was a little quiet as we watched basketball and snacked so to improve the chances of an enjoyable evening I had Janet take a one hour rest break. She probably slept for most of that hour but was awake when I went in to check on her and she seemed ready to make the rest of the day fun.

Janet helped a little with the dinner prep and did some really good standing for more than ten minutes while Laurel and Heather made dinner. With some lively Christmas music playing, Janet even got a few dance moves going while holding onto a countertop and briefly a couple times not holding onto anything. The music and business of the kitchen were good distractions to any discomfort Janet was experiencing and she even executed a well controlled decent back into her wheelchair. High Five!

Dinner was outstanding and the conversation around the table very enjoyable as we all relaxed and enjoyed wine and laughter. Janet participated fully and even after a more wine than she probably should have she was fully engaged in what was happening and had a really fun time. She surprised us all by calling her own bedtime at ten o’clock when she seemed to be going pretty strong. Good for her to recognize when she’s tired though and she did fall asleep pretty quick.

We hope you enjoyed your Christmas as much as we did. Praying for a night of uninterrupted sleep and lots of energy for tomorrow.

The Team Save Janet Report is Out! #TSJ #ChristmasEve

I’m keeping this one intentionally short as its Christmas and all. Janet had a good day, a little quiet but she said it was a good one. The kids walked with her to the local Starbucks in the sunshine and Janet really enjoyed that. The girls helped her get dressed for church and Janet is really starting to enjoy wearing dressier clothes again. She looked beautiful tonight and made it through until after ten without a nap. There were moments where I wasn’t sure she would make it and I nagged her a little about drinking water hoping that would keep her energy up. She had enough energy to get mad at me for nagging her and I guess that’s a good thing. At church Janet stood the longest she has yet and said afterwards that she intended to stand longer tonight. High five!

Joy to the World

Joy to the World

Joy!

Joy!

I feel truly blessed to be able to have Janet home for an extended stay this Christmas and am especially happy with how well she is able to participate in our family activities. As an example, we played a little Pictionary tonight and Janet drew a couple of things that her team guessed correctly and she even gave enough good clues that her team guessed correctly on one turn of Catch Phrase. Not only that, Janet can recite a fair bit of Twas the Night Before Christmas by heart too. We did one attempt with me prompting her from the book and I never had to give her more than three words and she would complete the next two or three lines. Such a massive change from a year ago when she had just transferred to Connect.


Janet and I wish you all a very blessed Christmas!

The Team Save Janet Report is Out! #TSJ #Movie

Today was the good part of Christmas and the bad part of Christmas all rolled into one, in my opinion. That’s not how Janet feels though as she enjoyed her entire day. First on the agenda was our new tradition called the Mall Blitz. In the true spirit of Christmas we’ve all agreed to drastically reduce the number of presents and the dollars spent on them to where we draw names in the mall and race off to spend thirty dollars in thirty minutes on the person whose name you drew. Sounds like fun to a lot of you I’m sure and I admit, the concept is fine by me too. I only hate it when I’m actually doing it. Helping Janet was almost fun and she secured her gift really quickly but when it became my turn I did not have fun and wound up getting way too stressed which took my mind away from caring for Janet thereby missing an opportunity for a washroom break. Janet called her own break ten minutes later but by that time it was too late. That made me even madder but thankfully the kids stepped in and kept Janet entertained while I quietly fumed my way through most of the rest of the day.

Janet enjoyed a lively lunch table followed by wrapping presents with me while the kids did a grocery shop. She wrapped all of the presents we had and showed good command of the concept, picking out the paper she wanted for each one and folding with her one hand as well as I can with two. We broke the rules this year by getting stockings for those kids that are here as Janet really likes that part of gift giving and I want her to enjoy herself as much as possible. She helped me fill those then went and helped Laurel and Heather wrap some more presents. Watching her happily carry and place them under the tree was quite sweet.

We had talked a while ago about seeing a movie while the kids were here and tonight seemed the best night to try and do that. Janet was excited about the idea so after dinner we drove off to see Saving Mr. Banks. This was the first time in a movie theatre since Janet got sick nineteen months ago and I wasn’t sure what to expect. Turns out the wheelchair area seats are pretty good ones and we picked a good Janet movie to see. It’s the story of Walt Disney and his pursuit of the rights to make the Mary Poppins books into a movie. Naturally there are scenes that include the songs from the movie and you can guess what Janet did during those. She wasn’t too loud as to disturb anyone around us but loud enough that Laurel could hear her from three seats away. Watching her sing with a big smile on her face there was no way I was going to tell her to stop. With no nap today I was a little concerned she might not make it through a two hour movie but she did so easily and loved talking about it afterwards with everyone. She was not able to catch on to the way the story was told but understood the basics and remembered Disneyland from the scenes there. It was a lot of fun and begin out doing something with then family like that is a good thing about Christmas. I now also know we can go to more movies with no real concerns.

After a little dessert and movie talk at home Janet called bedtime saying goodnight excitedly knowing tomorrow is Christmas Eve. Praying for a night of deep and healing sleep and a day of celebration tomorrow.

The Team Save Janet Report is Out! #TSJ #friends

No sleep in today but getting ready for breakfast seemed to take longer than normal so it was a little on the late side by the time we got that started. The house is a little fuller now that Cam is here and Janet enjoyed the extra activity this morning. Heather gave her mom a nice manicure after breakfast which included a trendy accent nail that Janet for some reason rejected. I thought it was cool but she felt it wasn’t her. Another sign of her getting better as a couple of months ago we could have gotten away with that one easily.

The afternoon was spent visiting with a few friends we haven’t been able to see in quite a while. Janet was happy to have a house full of people and the energy that brings. I think she may have been a little overwhelmed at times and it seemed like if things were too much for her she turned her attention to the Seahawks game. All day long she refused my offers of a glass of wine and that was likely a good call on her part as she was able to power through the day without a nap. I thought for sure she would crash soon after dinner but she got that second wind and made it through A Christmas Story when neither Heather or Laurel did. I think one thing that helped Janet gain that extra energy was a little time spent on the Karaoke Channel singing a few Christmas Carols. I asked her which one she wanted to sing and she simply said “just play one and I’ll sing it”. And that she did.

We are truly blessed to have a home with which we can welcome friends and family into and it was fun having good friends over today. Gatherings like that are far more valuable than any sort of Christmas present and are also an important part of Janet’s rehabilitation. Thanks to those that shared their time with us today. Praying for a night of uninterrupted sleep for Janet and more confidence in using her right leg.

The Team Save Janet Report is Out! #TSJ #baking

Janet and I slept in a little this morning after being up a little late last night. Laurel and Heather got her helping with some Christmas baking after breakfast and a Skype chat with Mary/Gaga in which Janet wasn’t quite as chatty as she can be. The baking went on for a long time but Janet said she enjoyed it and was glad to help.

We didn’t do any formal exercise today but Janet’s transfers continue to improve and she managed a couple of unassisted stands from her wheelchair one of which included a nice turn to sit on the couch with no help at all. High five! We did a little standing and walking this afternoon as well with no significant changes to report. The ankle brace is helping but the AFO will be much better.

After a little afternoon nap Janet helped with dinner prep but seemed a little low on energy still. She said she was fine and just didn’t have anything to say. The girls all watched a movie before bed and by the end of the day she said she had enjoyed her time with the girls baking and is looking forward to the Seahawks game tomorrow.

Praying for a deep and healing sleep tonight and lots of energy tomorrow.

The Team Save Janet Report is Out! #TSJ #Decorating

I never got a chance to talk to Randy today but I am declaring the renovation complete as of yesterday! Seventy three days of hard work by Randy to turn a nice house into our home. Thanks and great job!

Jess and Garrett thankfully put Janet through her paces this morning knowing this was the last chance before the Christmas break. A shower, the Shuttle, the bike, stretching, a full meal deal and Janet seemed pleased about it in telling me how it all went. She knows she needed to take advantage of the opportunity before coming home. The atmosphere around Connect has been very positive lately and combined with the goal of coming home has helped Janet to stay focused. Everyone from her house was in the lobby taking a group photo when I arrived and Janet very loudly invited me into it. Her voice has really improved over the last month and I credit the singing, including the antics at the dinner table with Big Country.

We got all packed up and made the snowy drive home with Janet getting excited when she recognized we were on a street very close to the house. After a happy reuniting with Heather and some lunch the girls got down to the business of decorating.
HJLDecorating
There was singing and laughing and in the end, a very Christmassy looking home. Janet contributed by directing Laurel and Heather at times and by hanging ornaments on the tree. It sounded like fun and wore Janet out just enough that she agreed to a little siesta before dinner. Laurel and Heather made dinner for us tonight and it was really nice to sit down and enjoy a home cooked meal. I reminded Janet her wheelchair is for moving around in and if she’s going to be in a certain spot for a long time she should be in a real chair. Following that policy Janet did a lot of standing transfers today, most of which were pretty good and I’m sure will improve over the holidays. One thing that has improved for Janet is her awareness regarding going to the bathroom. As long as she’s awake she is able to get to the toilet on time almost always, certainly enough to try going without the pull up briefs she’s been wearing for so long and switch into panty liners during the day. Today was day one and it was a success.

Neither of the girls had seen the Carrie Underwood version of The Sound of Music yet so Janet was all over watching that with them after dinner. I’m sure this marks well past the hundredth time Janet has seen some version of the story and she seems to enjoy it equally each time, singing almost word for word the whole way through.

Today was a good start to Christmas for Janet and tomorrow promises more excitement as Cam arrives in the evening. Praying for an uninterrupted night of sleep and a fun day tomorrow.

The Team Save Janet Report is Out! #TSJ #workinghard

Renovation Day 73. Is this the last day? Could be! Randy was at the house today to complete the grouting on the back splashes in each bathroom and I can’t think of anything else that needs doing. I’ll wait to confirm with him before making it official but either way, Janet is able to come home for Christmas to a beautiful new home.

I met Janet at the pool this morning for the last swimming session of 2013. As an early Christmas present for her the water was notably warmer than usual and she had another strong session. We started in the deep tank again and did some lengths with Gillian whose doing a Physio therapy practicum with Tez. She showed Janet a few good leg exercises she can do in the deep water and told us how we can adapt them for at home too. Nice to have her there. Janet swam probably her longest times on her tummy today and is clearly getting stronger in the water. She also did a great job of getting her feet down so she could rest against the pool wall. In the kiddie pool Janet did some good balancing and sit to stands. It’s of course much easier to standup when your sitting in waist deep water but I think it’s still good practice for her. The hot tub as usual was a rewarding way to finish.

Janet returned to Connect with the staff for a house Christmas party that had just wound down by the time Laurel and I got there. I think Janet was on a bit of a coffee or sugar high when we got there as she was sitting on the couch with a big mug of coffee and a tray of cookies and butter tarts in front of her. She had way more energy than I expected her to have and it was fun to hear her tell of how it all went.

Knowing she had to get some exercise tonight Janet chose a bike ride first. I challenged her with level five and had her sit farther back than normal. She found it a little hard but still rode well and had a good workout. Dinner was lively tonight as Kieran and Big Counrty were in fine form with Janet in the middle of it all. She was quite proud of the fact she had two servings of dinner to Big Country’s one. To work that off we went upstairs with Dyllon, a part time staff member we haven’t worked with before, to do some walking. We took Tez’s advice and started slow to allow Janet’s right ankle to stretch out and after going about half way down the parallel bars she started to get into a pretty good rhythm with assistance. She was too tired to make it all the way back to her wheelchair so Laurel brought it to her to give her a rest. Her side stepping tonight was actually pretty good and she had one successful unassisted sit to stand from her wheelchair. High five.

Maybe pushing things a little too far I had Janet use the Standing Frame after her walking practice and fifteen minutes in she complained of a sore tummy. Fearing a repeat of that really bad pain she had a couple weeks ago we bailed out of standing and let Janet relax the rest of the evening. The three of us watched the finale of X Factor occasionally joined by some other residents. Janet said that watching the show was fun but I think she was a little too tired to fully enjoy. That should make for a good night of sleep and I pray she has lots of energy for a fun day with Laurel and Heather tomorrow.

The Team Save Janet Report is Out! #TSJ #workinghard

Renovation Day 72. Randy installed the glass doors on the remaining cabinets today and I think only has a small job in each bathroom before declaring the renovation complete. Yeah!

Janet did her regular morning routine which included a bike ride and some stretching after a shower and breakfast. She told me she handed out the last of her Christmas cards and did some comprehension work with Mary Lou.

As far as Janet is concerned the day didn’t really begin until Laurel arrived at Connect and the two of them went out for lunch and did a little Christmas shopping. Laurel said her mom did well at choosing and paying for the items she chose and Janet seemed pleased with herself and was all smiles about it when they got home. Janet was a little worn out though and agreed to try a nap for a bit. I think she did sleep for half an hour or so and gained more energy as she ate dinner and watched the final performance show of X Factor.

The deal was if we stayed home for dinner and watched X Factor then she’d have to go to the gym when we got back to Connect and that’s what she did. Since she rode the bike in the morning and did a little walking at home the Shuttle was the best option for tonight. Janet of course didn’t like that idea but cooperated and put in a very strong effort. Her extension is now a consistent twelve inches and occasionally nears thirteen. She managed some good pushes with just her right leg even with more tension on there than she’s used to. There were protests at first but once she realized she just had to try her best she bore down and worked hard. We tried a little balancing board after the Shuttle and got some decent pushes with her right leg then as well. Janet has trouble bending her knees which I think is what you have to do on that board but she tried hard and had a good rhythm going for a while.

I’m not sure if the staff have started Janet’s self medication program yet but for her evening ones I’ve only had to ask Janet questions around what time it is and she clues in that she needs her meds. She doesn’t hesitate at all to find a staff member and ask them for her drugs, medicine, meds, medical things, pills, special things or some other word close to that. We will work on the names of each one over the Christmas break and also see if she can remember to ask for them without prompting. I think she can in the morning for sure.

We all watched a little TV so Janet could wind down and she called bedtime a little earlier than normal after a pretty busy day. Praying for a good sleep tonight and lots of energy tomorrow as well as a safe and on time flight for Heather.

The Team Save Janet Report is Out! #TSJ #progress

Renovation Day 71. No action at the house today. Tomorrow?

I met Janet and Jess at KGH this morning for our regular chat with Dr. Miller. As usual the conversation was very positive with Janet talking louder than ever and expressing her thoughts better than ever. She continues to impress and I got the feeling she values Dr. Miller’s comments so hopefully she takes them seriously and uses them to lessen her self doubt.

Janet’s celebrity status continues at KGH as she saw a number of her former nurses, rehab coaches and even Barb, a former patient. Janet didn’t really remember Barb as she looks quite different than when she was in rehab with Janet. We hope to meet her and her husband Cliff for dinner in January and I’m sure once the stories start flying Janet will remember a little.

Jess took Janet back to Connect while I tried to be productive around the house for a bit. Didn’t really happen but I made it to Connect for the last part of singing with John. Their session today was pretty casual and took place in the living room so others could join in. Janet gave me a demo of an old song her and John sang way back when they started working together and she sang it loud and word for word from memory. John has been a huge blessing and we wish him a very merry Christmas.

Tez met us in Janet’s room a little while later to discuss transfers and walking. I was concerned about the verbal and physical cues I’ve been giving Janet now that she is getting to a standing position mostly on her own. Turns out I wasn’t too far off the mark and Janet impressed Tez with her ability to stand from her wheelchair using only the armrest. Sometimes its necessary to give Janet a little lateral boost from behind but other than that she is getting really close to not having to use the transfer poles at all. When walking I learned I was completely out of position and with Tez assisting, Janet took some excellent steps with her right leg, moving it forward more than I’ve noticed before. To finish off I asked Tez to observe Janet on the bike and he proceeded to make things a lot harder for Janet than I had. He believes Janet is capable of more on the bike so he moved her seat back a little to allow more leg extension, increased the level of difficulty and wants her to do that in spurts like hill climbing. The most interesting part was when he had Janet pedal with only her right leg. It was no surprise that she couldn’t complete an entire revolution and really interesting to see that. Janet didn’t seem upset by it and Tez feels she can get that going but has to keep working hard at it. I’m hoping we can do that and still keep the bike fun. Janet had forgotten Tez’s Christmas card so got it from her room and took it upstairs to him all by herself, impressing me quite a bit. She’s such a big girl now.

Janet was pretty exhausted after all that and tried to have a little nap but couldn’t fall asleep so we took off to do a little shopping. We knew what we wanted to get and picked the right time to do it as we were in and out and at home with ten minutes to spare before The Voice Finale started. I decided it was best since we were out to go home for dinner and watch The Voice live instead of trying to stay up till eleven watching it at Connect. It was a good call as Janet made it through the show but had no chance of making it to eleven. We got back to Connect at nine and Janet said she’d go for a bike ride “if it’s good for me”. Certainly couldn’t hurt so off she went for a twenty minute hill climbing ride and considering how tired she was had a good result. That was the capper though and it was into bed right after that with Janet looking forward to Laurel meeting her for lunch tomorrow.

Praying for rest and healing tonight and lots of energy for tomorrow and a safe flight for Laurel.