hope

Janet, A Success Story. July 24. #TSJ

Janet and I met with her team at Connect early this morning and found it to be a productive time. Everyone is supportive of the idea of Janet setting goals to reach before leaving Connect as opposed to choosing a specific date and there was good discussion around what to set as goals in each area. The outcome is as follows;

– Walking- Janet wants to walk “like a regular person”. When asked to define that she said “being able to walk without standing there not knowing what to do”. Tez will use the 6 Minute Walking Test to measure Janet’s progress. The low end of “normal” for that test is 700 meters in 6 minutes. Today Janet did 27 meters. She likely will be tested a couple more times before setting a specific target to reach before leaving Connect.Tez recommends Janet use her cane to gain speed and confidence in walking. She is reluctant but was encouraged to hear that its a temporary thing. Janet used the cane for her last two walking trips at home tonight and although it didn’t speed her up she felt OK with using it.
– Steps- Janet would like to be able to climb and descend three steps on her own using only a handrail. Tez agreed she can likely do that very soon and will have the staff take Janet on the stairs at Connect next week.
– Reading- Janet wants to be able to read to three and four year olds with expression. Mary Lou says she’s making good progress and that is an achievable goal.
– Writing- Brian and I would like to see Janet be able to write her name, address and phone number on a form and be able to leave hand-written notes for people. Janet sees the value in that and will work with Mary Lou to get there.
– Home Chores- Janet would like to be able to load and operate the washer, drier and dishwasher as well as be able to operate the cooktop. Brian will come to the house one day soon to assess Janet and coach her on how to improve with those tasks.
– Toileting- Janet would like to be independent in her toileting routine. The staff have been training Janet and will coach me so I can help Janet at home.

Like I said, it was a productive meeting. The day only got better as Janet was able to come home for the weekend before lunch. We took advantage of the cool weather to stop and get Janet a couple new bathing suits and I think we did pretty well. You may see them this weekend. Janet napped while I went to the grocery store with the list she helped create then in the spirit of going after those goals I put Janet to work. We pitted two pounds of cherries for freezing, she pulled the stems off all of them and pitted some. She ordered quesadillas for dinner and chopped peppers, onion and mushrooms then built each quesadilla for us. After dinner she rinsed the dishes while I washed. She did all of this with no wheelchair in sight and standing for some of it.

Our neighbour, Bonnie came over for a post dinner glass of wine and a chat. She told us she had just baked three cherry pies and Janet got all excited saying that is her favourite pie. It must have been from her childhood because I don’t remember liking pie at all. Bonnie kindly agreed to bake one more. Smooth move Janet.

I’m looking forward to a fun weekend of involving Janet in as many household tasks as possible and walking a lot. Praying for an uninterrupted night of sleep and giving thanks for all we have been blessed with.

Janet, A Success Story. July 20. #TSJ

You know its’ been hot when you think 28 degrees is cool. That’s what it was this afternoon as Janet and I strolled the beaches in our neighbourhood. We discovered this really cool ramp into the water, with hand rails, at Rotary Beach, so now I just have to convince Janet to “jump” in the lake. Wish me luck.

This past weekend was very relaxing and Janet and I had a lot of time together just hanging out. Friday evening was our Small Group meeting with Annie and Patrick, the only two that have persevered with us and we appreciate them for their openness and willingness to share. Saturday morning was a visit with John, who seems to be doing a little better, then church in the evening which got Janet’s brain wheels spinning and we had a good discussion well into the evening.

That was it for formal events, the rest of the time was spent walking around the neighbourhood, sitting in the sun, walking to do some errands, cooking and watching a little TV. Janet walked around the house a lot and is still doing great with it save for some overthinking when going down the steps into the garage. Going up seems to be much more automatic. She admits to being quite nervous walking still and that makes it more difficult and sweaty. Janet never was much of a sweater but she sure can get it going now when she’s walking on her own.

At home Janet does great in getting herself to the bathroom when she needs to, which is quite often lately. When we are out, she’s not doing so well and I think it’s time for a doctor visit to see what can be done. I don’t expect the GP to have much to offer but I hope we can get a referral to a urologist. In my opinion its definitely a neurological issue, not physical so it may be really tough to treat. It could also just be a temporary set back and that’s what I’m hoping for.

One of the highlights of the weekend was watching the movie Forrest Gump. I don’t know why, but neither of us remembers watching the whole movie before and we so enjoyed it. Janet said there wasn’t a dull moment in the entire film and she was in tears at the end. A strange reaction to liking a movie but touching just the same. Its a lot of fun and actually very special to be able to watch something like that and have Janet totally understand the storyline and get most of the jokes and even remember some of it the next day. Love her.

Praying for a solid night of sleep for Janet and a dry and productive Monday.

Janet, A Success Story. July 13. #TSJ Heat

Janet and I had a good weekend, mostly very positive with one lingering negative that I hope we can resolve soon.

We are in the midst of a heat wave here, 40C today, and not even Janet is complaining about the A/C being on. I still can’t convince her to go swimming though, she’s hung up on not being able to walk “like a regular person” and looking “weird”. Next weekend, if we have time, I’m just going to tell her we’re going and see what happens.

Friday, we spent most of our time getting ready for our dinner guests. Janet insisted on making a carrot cake for dessert and I agreed as long as she helped. Her confidence and abilities in the kitchen continue to increase and this cake turned out better than the first one. Heidi and Jack joined us for a very nice evening of conversation and food. Janet was engaged the whole time and was a huge help in getting everything ready. That seemed to make the evening even more special for her but begin able to host two people that have been a huge support from day one was cool. Thanks for being you, Heidi and Jack.

Saturday had us visiting John just before his lunchtime. Janet remembered he wanted us to bring him a “double double” from Tim Horton’s so we did and boy was he happy about that! I’m glad we could cheer him up. Church was the one negative of the weekend, not the service at all, but the “accident” Janet had with three minutes left. I was mad because she gave me the old “I didn’t want to leave in the middle of the sermon” excuse and I don’t know how to get her to stop thinking that something else is more important than going to the bathroom. A work in progress. We turned things back to the positive side after we got home by walking down to Gyro Beach for a picnic dinner then a walk along the lakefront before getting home for ice cream. Being out at the beach at 9 o’clock at night in 30C weather is why we moved here. Love it.

Today was a little extreme, I’ll have to admit. 40C, even Janet was sweating a little, but still loving it. After Skype chats with Brittney and Leslie I dropped Janet off at Wendy and Tim’s house where a bridal shower was being held for a family friend, Amy. Janet was excited to attend as I guess she likes hanging out with other women and I’m glad she got the chance.

Nora, Janet, Amy

Nora, Janet, Amy


She told me after that she spoke a little to the group and “everyone was really nice to me”. The relationships that Janet is building within our community are helping her rehab a lot. We are blessed.

With the heat and lack of time for a nap, Janet was pretty tired heading into dinner time but still managed to help and did a good chunk of her help standing at the Island. After the prep work was done Janet mustered enough energy to Skype with Andrew and they seemed to enjoy talking tennis.

I sometimes get a little discouraged and frustrated with the pace of Janet’s recovery but I can look back on this weekend and see notable improvements like her being able to stand and work at the Island. Her walking around the house was slower but she did way more of it and never complained or asked for help once. Her stair work is greatly improved and we went on our first outside walk together. Janet walked holding my hand for five houses away from ours before we turned around and walked back. I can remember back in the KGH days saying to her I wanted to go for walks with her again. It’s starting!

Praying for a cool night of sleep for us all and that Janet has lots of energy and a positive attitude for the week ahead.

Janet, A Success Story. July 10. #TSJ

Today was get away day for Janet and when I got to Connect to pick her up I could tell she had been focused on that all day. She was deliberate in telling me she had just finished the Standing Frame and was ready to go. Since she was headed for the dentist I insisted she brush her teeth before we leave and that also gave her a chance to walk down the hall, something she hadn’t done much of today. She knew to stop by the med room to get her meds for the weekend and from what I could tell she performed that task well.

Janet has been doing a great job of brushing her teeth and I floss for her every night so we were both surprised when the dentist showed us three cavities in Janet’s mouth. He says they are likely leftovers from her hospital days and just took this long to show up. Hopefully that’s the end of them. All else is good in that department and Janet blew their minds by walking into the office freestyle all the way to the exam chair. The folks there have been very supportive since day one so it was nice for them to see Janet’s amazing physical progress up close.

Exchanging nap time for sun time Janet enjoyed some warmth before helping me make dinner. I could get real use to cooking like this. She’s more of a help each time and as planned we walked down to Menchie’s for a frozen yogurt later on.

First Menchie's #selfie

First Menchie’s #selfie


It’s a fun and smiley place for sure and we’ll be back as a treat from there goes to the winner of our So You Think You Can Dance bet. We watched this week’s episode tonight and Janet’s contestant out performed everyone we thought with mine doing OK. They both survived the first cut.

Praying for a restful night of sleep that provides lots of energy for a fun Friday.

Remember, there will be no posts now until late Sunday night unless events warrant. Peace.

Janet, A Success Story. July 9. #TSJ Video, Speed Walking

Janet’s day was pretty routine for the first half. She reported to me that she “did everything and it was all good”. Her pendant alarm rang as soon as I got to Connect so I went straight to her room where she was getting up from her nap and needed to go to the bathroom. Without her AFO and shoes on it’s not possible for her to walk on her own so she needs help and is really good at asking for it now. Once dressed, Janet walked well all the way to the patio where we stayed through dinner as the A/C was too cold inside. I will admit I turned the A/C on at our house today for the first time, as by 11 o’clock this morning it was over 28 degrees inside and that’s too warm even for me.

I thought with the heat I’d be able to convince Janet to go for a swim in the lake but she wasn’t having anything to do with that. It was all I could do just to get her feet in the water. It’s a start.
JanetWoodLake
We spent a lot of time planning things tonight. One thing I try to involve Janet in each week is the meal planning at home. She helps decide what the dinners will be and helps create a shopping list with me. Doing that could be a chore but thankfully Janet seems to enjoy begin involved in the decision making and appreciates each meal more when it happens as she had some input into it. We also try to plan some of our activities for when she is home and I think tomorrow evening we are finally going to get to try Menchie’s Frozen Yogurt. MMMM.

You haven’t gotten to see Janet walk for a while so I thought I’d give you a quick peak. Last night she flat out refused to go get her meds without me, tonight she never even asked me, she just got up and walked away. This is her making the return trip in record time.


Impressive huh? For reference, that walk really took just under three minutes.

Janet asked to go to bed a little early tonight so we’d have more time to read Are You There God, It’s Me Margaret. We did and she laughed a lot and continues to really enjoy it which is maybe why she remembers it so well. Each night before I read I ask her to tell me what happened the previous night and since we started this book she’s been bang on.

Praying for a good night of sleep and an energetic Thursday.

Janet, A Success Story. July 8. #TSJ Mobility equals Power

Dr. Miller was once again full of praise for Janet during their meeting this morning and she really seems to value his opinion. Janet did a great job filling him in on the wedding and travel adventures, speaking clearly with no struggle to find key words. Janet made the trip with no wheelchair and walked from the waiting area into Dr. Miller’s office unassisted. She left the same way after securing another speaking engagement. Dr. Miller invited Janet to speak to his Neuropsychology class at UBCO in March. She is all for it and is really starting to gain an appreciation for sharing her story.

Trips to KGH like that take up the entire morning so by the time Janet and Jess got back to Connect it was lunchtime. There was a little time for a bike ride before nap time which was very short partly because it was so nice outside and partly because I showed up soon after Janet laid down. She negotiated what she thought was a good deal for herself, going for a long walk instead of doing The Shuttle, until she realized she would actually be walking. For some reason she thought I’d be pushing her in the wheelchair, anyways, she put in a great effort walking freestyle roundtrip from her room upstairs to the pool room and back. That got her sweating and hungry for dinner. Then it was my turn to get sweaty as we walked, this time with the wheelchair, down to the lake. Summer is in full swing here and Janet loved sitting by the water watching the little kids play in it. I think I may have succeeded in getting her to try a swim tomorrow! Hopefully.
JanetLake
Games night was quiet tonight with only four of the usual group there. Janet started strong but faded notably the last twenty minutes on account of that super short nap this afternoon. It was still a good brain exercise to go through and a good physical one walking back to her room.

Janet’s increased mobility has given her new found power. It used to be that even if she didn’t want to walk somewhere I just had to grab her hand and start walking and she had no choice but to follow along. Tonight she flat out refused to walk down and get her meds and since she’s walking on her own, she turned and plunked herself down on her bed and refused to move for a good fifteen minutes. When I agreed to stay close to her she headed out and I stayed at the halfway point and watched her. She did great and I could hear her once again correctly name her meds and what they are for. She’s better than she thinks she is.

Praying for a long and restful sleep that provides lots of energy for a fun Wednesday.

Janet, A Success Story. July 6. #TSJ Good Friend

This morning was the opposite of Saturday as we both slept in rather than getting up early to watch tennis. Janet had a shower and is manoeuvring around the bathroom much better than when we first attempted showers here. I can remember practically carrying her in some cases, now I’m just a bit of a support.

It was just after ten by the time we were out making breakfast and we put our recorded version of the Gentlemen’s Championship of Wimbledon on. We let it play while we made and ate breakfast then Janet had her weekly Skype session with Mary/Gaga then we focused on the tennis. Janet impressed me over and over with her increasing knowledge of the game as well as her understanding of what was happening moment to moment. Her best comment came in the third set when she observed that Roger Federer was making most of his first serves and Novak Djokovic wasn’t. Brilliant.

I wasn’t planning on sitting through the entire match but Janet was really enjoying it and it was an amazing battle so we only sped through a small portion of it with Championship Point coming just as Kiko arrived for a visit. Janet initiated this get together as she had some questions coming out of Tim’s message at Trinity last week and thought Kiko would be a good person to talk to. She’s right, they enjoyed a nice afternoon together chatting away and sipping wine with Janet feeling really happy about it all afterwards and Kiko saying to me how impressed she was with Janet’s memory and social skills. There has been a very steady improvement in those areas the last little while and Janet is always at her best when she’s with people she cares about.

Sunday afternoon with a good friend.

Sunday afternoon with a good friend.


After a very brief nap to recoup a little we enjoyed a Chinese food dinner then made the sad trip back to Connect. The wheelchair was not used at all after breakfast today except for when I went to pick up dinner. Janet walked well, mostly with assistance today as I wanted her moving at a quicker pace and she did a great job on the steps multiple times.

Praying for a long night of healing sleep and an energetic Monday. Thanking Jesus for blessing us with amazing people in our lives.

Janet, A Success Story. July 4. #TSJ Tennis Babe

Early this morning Janet “woke up” repeatedly asking me for my “ticket”. She was very much in a dream yet appeared to be awake. It was a little unnerving and when she did snap out of it all she could explain was we were all heading “home” from somewhere. Not as fun as the cruise dream but certainly Janet was deeper into this one.

After breakfast we went to visit John for a bit as we hadn’t seen him for a few weeks. Janet was able to tell him some wedding and travel stories and we all talked soccer and tennis. Janet was pleased we went as she believes John is always happy to see us. Who isn’t?

Since Janet has been enjoying tennis on TV so much I decided to take her to see some live. There is a Futures tournament on here now and never having seen live professional tennis before we decided to check it out.

Intently watching the action.

Intently watching the action.


It was a lot of fun and we both were impressed by the intensity of the players. You see it on TV but feel it when you’re there. The semi finals are tomorrow and we may go back as we will be on a tennis high after Genie Bouchard wins Wimbledon.

I allowed Janet to walk around the house as she pleased today in line with what Tez said yesterday and she did well. There was no leaning on anything and she tackled the open areas with reasonable confidence. She did an awesome job on the steps to and from the garage, hardly using me at all. Overall, a good day.

Praying for a restful night of sleep and a fun Saturday.

Janet, A Success Story. July 3. #TSJ

I got my phone call from Janet much earlier than typical today as she very excitedly called me right after Genie Bouchard won her semi final match at Wimbledon. Janet watched the last half of the match during her breakfast and was super excited Genie won, so much so that we are getting up early Saturday to watch the Championship live. Janet is liking both the game of tennis (“it’s played in a nice warm, clean place”) and the person that Genie seems to be (“a nice and intelligent good looking person”).

Another thing that got Janet all excited today was getting to come home for the weekend. Garrett commented that Janet really took the initiative in regards to her exercise routine this morning by walking up to him on a couple of occasions and asking if she could do something. According to Janet she was motivated by not only wanting to get them done but by the prospect of coming home. Whatever works.

Tez was in the building today and offered a few tips on walking. I’ve been nagging Janet to stop hanging onto walls and furniture while walking freestyle and Tez says not to worry about that as long as Janet isn’t leaning onto things for support. If it’s for security purposes its fine. I asked him about Janet walking barefoot for a few steps and he thought that wasn’t the greatest idea but if Janet wants to do so using her cane and carefully stepping out with her right foot so it lands flat on the floor, fine. We brought the cane home in case she wants to try. The motivation for this is to refrain from using the wheelchair as much as possible including first thing in the morning and when going to the bathroom after having gotten into bed at night or after a nap. Sounds like it may be a little too soon to really go after.

Janet was a big help at dinner time tonight, preparing a veggie stir fry by herself except for getting the very heavy frying pan out and turning on the cooktop. I could have sat back and drank wine while she cooked. Maybe tomorrow.

Praying for a long night of reenergizing sleep and a productive Friday.

Janet, A Success Story. July 2. #TSJ Sailing Away

Yesterday,Garrett and I had tried to persuade Janet into going sailing with a few people today. She of course was having nothing of the idea but couldn’t argue with Garrett this morning as the weather was great and we had worked her enough that she felt she had to go. I don’t like pressuring Janet to do something she doesn’t want to do unless I feel its good for her and to venture out with people she likes into the sunshine is good for her. Later on she told me the sailing “wasn’t so great” but they all went out for coffee after and “that was fun”.

As it turned out, Janet could have pretty much stayed at the yacht club all day as the Sailing Association invited all of its users to a BBQ in honour of the naming of their new boat this evening. I met Janet and the gang there and we spent a nice couple of hours on the waterfront complete with food and wine.

The gang and Janet with her wine shooter. #thatswhatboatingisallabout

The gang and Janet with her wine shooter. #thatswhatboatingisallabout


There really wasn’t time to do much when we got back to Connect so I took Janet for a speed walk around the place. She wasn’t very happy about it but did very well, walking faster than I can remember and not stumbling at all. She did a good amount of freestyle walking as well including the trip to get her meds when she answered all of Chelsea’s questions as to what she takes correctly without help for the first time ever. She even got the day, month, date, year thing a hundred percent. High five!

Praying for a night of restful sleep and for more progress tomorrow.