hope

Janet, A Success Story. September 16. #TSJ

Rumour has it that Janet cooperated with Tez and Jess this morning and when she actually did what they asked she did it well. The exercise Tez is working Janet on is a step routine up and down on a four inch block. That’s less than any steps at home and Janet is easily capable of doing it, she still lacks the confidence to really attack it. I did manage to get her to walk down both flights of stairs this afternoon and she did really well with them even saying at the end that it felt good to have done it.

There was lots of walking the balance of the day for Janet and she probably put on more than a kilometre by the time she was done. All the trips were purposeful as opposed to exercise oriented and she walked beside me holding my hand most of the time. I can’t tell if she’s improved her pace much yet but she certainly hasn’t slowed down.

Janet went into Games Night convinced she wasn’t going to say much then ended up participating nicely. Same old story. Each week the group is charged with remembering “the word of the week”. Last week’s word was supercalifragilisticexpialidocious. Of course that was easy to remember and the whole group sang the song repeatedly to prove it. This week the word is a favourite of Janet’s, sunshine. Naturally everyone started singing You Are My Sunshine. Yikes.

Once again Janet didn’t really nap and paid for that as the evening wore on and come reading time she was asleep. Praying for a solid night of sleep and a happy Janet on Wednesday.

Janet, A Success Story. September 15. #TSJ Wet

Monday, that dreaded first day back at Connect. Janet must have been really worked up about being back there today. How else to explain the three accidents she had this morning in not making it to the bathroom in time. She called me out of frustration after the worst of it seemed to have past and she was headed out to the sunshine in hopes that would make her feel better. I had a chat with Jess when I arrived later on and she was at a loss to try and explain it. I think Janet gets so anxious about being at Connect and having to do so many therapy type things that she loses some control. Maybe not, but she was fine all afternoon and evening.

On the bright side, Jess was really excited to tell me that Janet had dressed herself this morning. That’s not one of Janet’s goals but certainly would be nice for her to be able to do. All she needed help with was her bra and her AFO and splint. Janet thought Jess was being “crabby” in making her do that but she very matter of factly undressed herself tonight and put her PJ’s on so I think a sense of independence was breaking through and I saw a glimpse of satisfaction on her face when she was done.

The 400 meter walk tonight was Janet’s fastest yet. I’ve switched to holding her hand full time and having her walk beside me. I find this method to be as close to her walking completely on her own as possible as I’m not pulling nor is she gripping and pushing down. Instead of pulling her to walk faster I simply ask her to match my pace and within reason she does. Janet actually put on a lot of mileage tonight as she climbed the stairs and walked back and forth from her room to the patio multiple times.

The day started out with frustration and ended with satisfaction. Praying for a night of uninterrupted sleep and a successful Tuesday.

Janet, A Success Story. September 14. #TSJ

As promised, this was a busy weekend and Janet handled it all very well. There was limited time for napping but lately it seems as long as she gets some sort of chance to rest a little she can recharge and function fine for the remainder of the day.

My mom arrived for a weekend visit Friday afternoon having hitched a ride from Nanaimo with her good friends Mo and Betty Ann. It was fun having them here for dinner and Janet really enjoyed the conversation.

Betty Ann, Mo, Janet, my mom.

Betty Ann, Mo, Janet, my mom.


It proved a good set up for our wine club gathering that immediately followed. Janet continues to show a minimum of interest in learning about wine but really enjoys the house full of people and the energy that brings. Saturday we took my mom to the Farmer’s Market and enjoyed roaming around in the sunshine for an hour before bumping into nurse Arlene from Janet’s KGH days seconds after doing the same with Kiko. Arlene reminded us as Dr. Miller has, how meaningful it is for them to see the progress their former patients make. It’s a real motivator for them and hearing positive things from folks like Arlene impacts Janet differently than hearing it from those of us around her every day.

Brian came to the house Saturday afternoon to assess Janet’s abilities with some key activities there and to provide suggestions on how to improve her situation around the house. Our new deck is pretty much finished so there is now just one step from the living area to the deck and Janet is able to negotiate it with a minimum of help. Brian recommends a railing to aid Janet on the way out and some sort of grab bar for the way in. Our handyman will do the railing soon and I’ll scope out a grab bar. Being able to come and go from the deck all by herself will be huge for Janet, providing her with more independence. Coming into and out of the garage is going pretty well right now and only needs one additional grab bar plus some minor adjustments to Janet’s positioning which we practiced with success today. I mentioned Saturday that the goal of loading and unloading the dishwasher has been achieved and operating the cooktop could happen next weekend. The washer and dryer will take a little more practice and maybe something to sit on while Janet transfers clothes from one to the other. Not her wheelchair.

The only long walk Janet got in on Saturday was at church and that went well. I have to remember she’s walking way faster than before so we don’t need to leave the house so early as we end up waiting too long for the service to start. Good problem to have. The evening was rounded out with dinner at home with my mom and Courtney. Janet for some reason got all upset about the idea of going to Menchie’s after, saying she doesn’t like it anymore. Not sure where all the negativity came from and it reminded me of her episode with Tez last week. As soon as she was half way finished her bowl of froyo, the smiles were back.

We drove my mom to Peachland this morning to meet up with her ride back to Nanaimo and enjoyed a nice chat with the ladies in the sun at Bliss Bakery before getting back to the house for the Seahawks game. It was way too nice to sit inside and watch football so we rigged things so we could sit on the deck and watch the game through the windows. Worked fine and also allowed Janet to sit outside to Skype with a bunch of family gathered at Leslie and Gavin’s today. It was cool for her to be able to connect with them all in one shot like that.

There was finally time for a 400 meter walk today and it came when Janet would’ve been better off napping. She pushed through like a pro and went for a nap right after. The rest of the evening seemed rather sombre as Janet knew she was headed back to Connect again. By the time I said goodnight she was virtually asleep and accepting of being there and thankful the week ahead has a routine schedule. Praying for a solid night of sleep that provides lots of energy for Monday.

Janet, A Success Story. September 11. #TSJ

An anxious Janet called me this morning to say she was all done her exercises and could I please come and get her soon. How could I resist? She had had a good morning, working with a much better attitude than the previous day and she was thrilled to be heading home before lunch. We made a few stops along the way looking for new patio furniture to go with our new deck and that gave Janet a chance to walk around stores and parking lots using her cane. She was quite slow during each excursion as she is quite nervous in strange territory. Practice practice.

Once we got home Janet had a good nap after a late lunch before going for her 400 meter walk. We went a slightly different route today so she could stay in the sunshine and again I thought she was rather slow. I led her all the way but she really pulled back on my arm and didn’t seem too confident. At least she did it and if she can keep doing it she should find it gets easier.

Janet managed enough energy to help build pizzas for dinner and we enjoyed a quiet evening and an early bedtime ahead of a busy weekend.

Praying for an uninterrupted night of sleep and lots of energy tomorrow.

Janet, A Success Story. September 10. #TSJ Uncle Monkey

There’s nothing like a little morning confusion is there? Janet called me as I was on the road heading for her Team Meeting and she said “they don’t think there is a meeting”. Turns out a few of the key people didn’t have this meeting in their calendars but Janet was going around telling them all there was one. When “they” realized Janet was right all was well and Janet received some well earned praise for being on top of things and she felt pretty good about being correct.

The meeting itself was productive and Janet was a full participant. Mary Lou said Janet is progressing nicely on her reading skills and sees no problem for Janet reading a story to pre school kids for Halloween. Janet is not excited about practicing writing but thinks she can give it a good go especially after she correctly said our address when asked. That’s the first time she’s gotten it all right that I’ve heard and she felt pretty good about that too. Brian is scheduled to visit the house on Saturday to assess Janet’s competence with certain activities there and I wouldn’t be surprised if we can check off another goal or two very soon after that. As far as the walking 400 meters in six minutes goes, that obviously is the biggest challenge Janet faces and hopefully she adjusts her attitude and works hard for Tez tomorrow and from now on. He was unable to attend this morning so I will follow up with him next week.

With the meeting done, Janet was free for the rest of the day so she could hang with her brother Mike who treated us to a wonderful lunch at The Fixx Cafe. It was a nice enough day that we could walk to the restaurant and Janet actually walked the first 100 meters so she got some exercise today. It was fun sitting in the sun enjoying good food and Uncle Monkey’s banter. Thanks bro’.

Big Brother

Big Brother


Janet had time for a quick nap before dinner then we watched AGT before heading back to Connect. There was no complaining about going back tonight and I think the meeting may have inspired Janet to buckle down and get after those goals. Besides she’s only there for the morning then it’s home for a busy weekend.

Praying for a sound night of sleep and lots of energy tomorrow.

Janet, A Success Story. September 7. #TSJ LOUD

It feels like forever since I posted on this blog so this may be a little wordy. Janet and I had a great almost week together at home and on the road as this seems to be the summer that never ends. That’s a good thing.

Janet went for her Botox appointment last Wednesday morning and tolerated the needles well. Dr. McCann is happy with her progress and will keep her on a four month rotation. It was clear we need to keep treating Janet’s right hand finger flexors as well as her right hamstring. Dr. McCann also gave Janet a referral to an outpatient physio program that is run out of the local Rec centres as opposed to the hospital so we will see if that will work for her once she’s home full time.

The first stop on our road trip was Bellingham Washington. The idea was to break up the driving to the Seahawks game on Thursday to allow for a rest period for Janet before the game. Janet was a good passenger for the five hours it took to get to our hotel with a few bathroom breaks along the way and a very short wait at the border. Driving to Seattle Thursday was a breeze with no bathroom breaks during that two hour trip and we were pleasantly surprised to find our room ready for us even though it was only 12:30. Janet agreed to a rest before going out into the football madness.

Quite a few years ago Janet went to her first Seahawks game and she didn’t really like it much as it was loud and “mean”. A lot has changed since then and Janet is a true fan who joined right in on all the game day fun. Even as we arrived at our hotel the streets were full of fans heading to the pre game festivities so by the time we joined them it was hard to manoeuvre Janet in her wheelchair without running into someone. Janet was amazed by the number of people in the area and marvelled when she first saw the stadium. The weather could not have been better but to be safe Janet wore jeans and sat on a little jacket that she ended up wearing for the last ten minutes of the game. Janet chose to enter the stadium early and watch the teams warm up rather than stay in the crowds outside. Good call as we were able to familiarize ourselves with the washrooms and I gave Janet a good tour of everywhere she could go in the stadium. She declined to walk down to field level though. Maybe next time.

Ready for some football!

Ready for some football!


The game itself was so much fun with Janet getting right into it being as loud as she could. I think she was as entertained by the crowd as much as she was by the game which she spent most of the time watching on the giant video board as it was hard for her to sort out what was happening on the field. As opposed to her first game Janet enjoyed the action and still can’t get over how loud the crowd is. It was a great experience and we may have to start a tradition of going to the home opener every year.
Our view of the action.

Our view of the action.


It's LOUD!

It’s LOUD!

This video will give you a little sense of what it’s like at the game. There’s nothing like being there though.


We took the long way home on Friday, after spending some time on the Seattle waterfront and at a favourite beach of ours in Bellevue then taking I-90 over the mountains before heading north to home. Janet had a tough time after leaving the beach as she was tired and never really got control of her need for bathroom breaks so that made for a long trip that also wasn’t as scenic as I had hoped.
Everyone has a pic like this right?

Everyone has a pic like this right?


Meydenbauer Beach Park

Meydenbauer Beach Park


With just enough rest Friday night we welcomed some long time friends of Janet’s to the house Saturday afternoon. Diane and Blake were in the area and stopped by for a nice visit that meant a lot to Janet. I could see the wheels turning as the discussion centred around kids and friends. After church Janet insisted on watching the finale of So You Think You Can Dance as she wanted “to see my guy win”. He did! I owe Janet a Menchie’s treat and very proud of herself for picking the winner. High five! To cap off the weekend Courtney hung out with us this afternoon to watch some tennis and get us caught up on her life. Always nice to have her around.
A nice visit with friends Blake and Diane.

A nice visit with friends Blake and Diane.


Another summer vacation is over for Janet and there were no complaints about this one not being relaxing enough and there wasn’t much protesting about returning to Connect tonight. Janet did a four hundred meter walk this afternoon and on our way back from the beach I was able to demonstrate the speed she needs to go to get 400 meters in six minutes. She was rocked by that a little and I think will put in a solid week of work as she wants to be home full time soon.

Janet, A Success Story. August 28. #TSJ Frozen

Janet called me right at noon as she finished her workout and asked if she could come home sooner than planned. I obliged but she had to go grocery shopping with me on the way. Her morning was good according to her. Tez was away and sent a student to work with Janet and she liked him a lot. Not that he was that much easier on her but that he had a different approach to things. To help Janet take longer strides he placed markers on the floor and Janet had to hit each one as she stepped. A Tez idea but first tried today and Janet feels she did pretty well at it.

Grocery shopping was as fun as it can be and Janet enjoyed having a say in what we bought. She had another fun activity after that, a visit to the dentist. If they had automatic doors at the dentist office I could easily drop Janet off outside now and let her do the appointment completely on her own. Her cane walking is strong enough and she needs only the slightest bit of help lifting her right leg onto the dentist chair. Pretty cool. She was able to watch some tennis while in the chair and we watched more at home tonight treating this as Janet’s Friday especially since her mouth was frozen for hours. There are no specific plans tomorrow but I hope to have Janet practice some domestic activities as well as her distance walking. Praying for a restful night of sleep and continued improvement.

Janet, A Success Story. August 26. #TSJ #Storytime

Tuesdays are usually work with Tez days for Janet and she kind of dreads that. This morning she knew that AFO lady was coming to see her and that her session with Tez would be delayed. Well, AFO lady came rather late and Tez wasn’t feeling well so Janet had an easy morning. AFO lady was happy to see how much stronger Janet’s right leg has gotten and as a result has ordered some parts for Janet’s AFO so it can be modified to be more flexible. To further illustrate her increased strength Janet really impressed me with her bike ride tonight going farther and at a harder setting than ever before. She even climbed all nineteen steps very well on her way to Games Night.

Games Night was more of a story time with Janet night as she read The Hallo-Wiener to the group. Curtis couldn’t even finish introducing Janet and explaining what she was going to do before she started reading. There was no hint of nerves or anything as Janet jumped right into it. Like her previous public speeches, Janet tended to ad lib a lot instead of reading each word. That got her confused more than once and disrupted her rhythm. The good news is she knows she does it and agreed to work on stopping it. The group enjoyed the story and were very encouraging to Janet afterwards. Janet said it was OK but needs to keep practicing.

Storytime with Janet.

Storytime with Janet.


Praying for a good night of sleep that provides lots of energy for tomorrow.

Janet, A Success Story. August 25. #TSJ

Today was a pretty reasonable Monday for Janet. Curtis coached her through the gym routine and challenged her to read The Hallo-Wiener to the Games Night group tomorrow. A challenge that Janet readily accepted surprisingly enough.

She had just made her way down to the living room as I arrived at Connect this afternoon and was quite chatty. We hung out there visiting with Wes and his wife Roz and got a surprise visit from former resident, Fred. He’s hear for a week away from Connect Langley and it was fun to have him around tonight. Janet liked how he livened up the place.

Chelsea and Karl, both from England, decided to make the house an English breakfast for dinner tonight. Sausages, baked beans, potatoes etc. You may have already guessed that didn’t go over well with Janet so she ate my shrimp linguini and I ate her sausages and beans. She sometimes is referred to as queen of the house and lived up to that tonight.

Janet may not be queen for long as we were told that a new resident moves in across the hall from Janet tomorrow and happily she’s a girl. Janet is looking forward to meeting her.

One exercise Janet did not get to this morning was the Shuttle so tonight I gave her the option of doing that or climbing the stairs instead. She chose stairs and went up and down all nineteen in good fashion, with a little sweat and a minimum of complaining. When given the choice of what to do the rest of the night Janet very nicely remembered there was tennis on TV so we watched some first round action of the US Open broken up by some speed walking to the bathroom and freestyle walking to get meds. A strong day.

Praying for an excellent night of sleep for Janet and the desire and ability to fully participate in her Tuesday.

Janet, A Success Story. August 21. #TSJ Walking Best

Tez put Janet through the ringer again this morning and she responded very well. The cold has all but disappeared and Janet was highly motivated today in contrast to the last couple of days. Walking a lot without her cane Janet showed improvement in her stride to the point where Tez feels its time to adjust her AFO so that its not so rigid. Currently it supports Janet just like a ski boot and I think we all know how difficult it is to walk in those, so for Janet to have progressed to where she can where a more flexible AFO is huge. When the lady who built Janet’s AFO was chatting with us I got the impression she didn’t feel Janet would get there. Well, this coming Tuesday Janet will get to show her it wasn’t a matter of if but when.

Back on July 24th Janet did her first six minute walking test and managed to travel 27 meters. Today, less than a month later she more than doubled that distance to 55 meters! Her goal for leaving Connect is now set at 400 meters, a number Tez is confident she’ll reach provided she keeps putting in the work. We have a busy weekend planned but will find time for lots of walking.

Before going home today Janet got to stop at the dentist to have more cavities filled. The dentist feels these latest ones are still related to Janet’s very long time in the hospital where she wasn’t able to brush her teeth and he’s not worried about the future as Janet has good brushing and flossing habits.

It had been a long day by the time Janet got home so she went for a late nap so she could better enjoy her first night of the weekend. A glass of wine and the semi finals of So You Think You Can Dance made for a nice relaxing evening and a satisfying one as both of our contestants made it into the finals. As a bonus, our tickets to the SYTYCD Tour arrived today and even though its not until February, Janet is excited about going. Me too.

Tomorrow we make our radio debut and Janet says she’s a little scared about it. I know she’ll do well and it will be an exciting experience. Listen live at 5pm PDT here on CBC Radio.

Praying for a restful night of sleep, a fun Friday and for our story to inspire, encourage and bring faith to others.

PS. I’ve added a new page to this blog, Video. On it you will find each video that’s been posted of Janet since this adventure began. Enjoy.