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Janet, A Success Story. April 15. #TSJ

A nice bounce back by Janet today. No accidents, good workouts, good reading practice on her SheLife speech and even a little participation in Games Night.

Janet seemed in a good mood when I called her at lunch time. Jess had taken her to the lab for another blood test in preparation for her doctor appointment tomorrow and she had gone for a bike ride and some stretching. When I arrived at Connect I was surprised to find Janet in the living room “supervising” Brian and a wheelchair tech working on Big Country’s new wheelchair. She had napped a little bit and was eager to practice her SheLife speech so that’s what we did first. The more she read it the better she got and as long as she doesn’t over rehearse and has a good nap tomorrow afternoon she should do well.

Chelsea joined us in the gym to learn Janet’s Shuttle routine. I hadn’t seen Janet on the Shuttle for a while and was impressed with her effort. I’d say there is some improvement since last time. After dinner Janet managed a decent walk from her room to the lobby, which is about fifty feet away. I hope to talk to Tez about helping Janet to walk straight ahead instead of angling to the right as she mostly does. She doesn’t quite understand that she’s doing it even after I tried to show her how much shorter she’d have to go if she went straight. Anyways, it took a lot of convincing to get her to practice walking tonight but when she did she did well. I had her take a few steps holding onto me so I could gage how much she’s using the cane and there was hardly any pushing down on my arm leading me to think she could take a step completely free but she’s scared to try. The idea of practicing that in the pool crossed my mind but I didn’t mention it to Janet yet.

It was a struggle again to get Janet to go to Games Night and this time she didn’t participate much except for singing the Barney theme song during a guessing game. There was one more reading of her speech, which was too much that late in the day, then some email replying to do before bed. Praying that Janet is well rested, confident and focussed for all that she’s asked to do tomorrow.

Janet, A Success Story. April 14. #TSJ

Today started off great with Janet waking at a decent hour after a good sleep and easily taking a bath before breakfast. She was bright and alert and seemed ready for a good day. I left her and Heather for a little bit to attend to an appointment I had and when I returned they were sharing the couch watching Ellen. I asked Janet if she needed to go to the bathroom and got what I felt was a confident no. Minutes later it was like the flood in Noah and I was not in the least bit impressed. I got quite angry with Janet and I know she didn’t intentionally do this but she’s been doing so well and this is such a sudden and inconsistent change that I get really mad when it happens and take it out on her. We had a good talk with nurse Jen at Connect this afternoon and have an appointment with Janet’s doctor Wednesday and I think with an understanding of what’s happening I will be better able to handle it. There are two likely scenarios, one physiological and treatable the other neurological and not treatable. Pray it’s the former please.

In spite of my grumpiness the rest of the day was pretty good. Janet really enjoyed her time with Heather and is very grateful for her taking the time to come all this way to visit. Janet is very aware that the next time she sees her will be at her wedding and “that’s a big deal”. After we dropped Heather at the airport we went back to Connect and worked on Janet’s speech for SheLife. It’s been hard for me not to put words in her mouth and Janet has done a great job of constructing what she wants to say. We wrote it up on her iPad and found she was having a lot of trouble reading it as the page was too busy so I transferred it to a presentation app with one or two sentences on each slide that Janet can see clearly, read then tap to see the next slide. Should work.

After an early and quiet dinner Janet agreed to a bike ride. I wasn’t expecting much from her as she had no nap at all today but she put in a very solid performance with no complaining. Her next choice was more mine than hers and that was a walk. Again, I didn’t expect much but started her out at the kitchen table with the goal of making it to her bed and I was willing to let her bail at the Den. No need, as forty five minutes later she plunked herself down on her bed. She was exhausted but somewhat happy with what she’d done, I certainly was.

There wasn’t much to the rest of the evening other than some well deserved chocolate and once in bed, Janet was sleeping ten minutes later. Praying for a complete and immediate resolution to Janet’s incontinence issue, a deep and healing sleep tonight and a great Tuesday.

Janet, A Success Story. April 12. #TSJ

Shopping day was finally here. Janet remained lukewarm this morning to the idea of shopping for a dress to wear to Heather and Allan’s wedding in June but promised to give it a good go. I wasn’t that confident, as Janet seemed low on energy and certainly not her brightest. I went to the first store with her and Heather and thought it was cool the owner came right over and offered to help. Janet was quiet about everything and a little disinterested and it seemed like this was going to be a long day. To take some pressure off, I dropped the ladies off at the mall and went to visit John for a bit. He’s in a temporary care home now and starting to settle in there a little. Please keep him in your prayers as he has to adjust to some big changes in his life. Upon my return to the mall Janet happily informed me they had found something. Turned out she wasn’t a hundred percent sure on it so the hunt continued. A little while later I got another report of success and the mission was being declared a success. Janet had steadily declined in energy level and to me didn’t seem to be having any fun at all. She was really neglecting her right side, frequently crashing into things. Thinking some food might help, we grabbed mall food and Janet only ate half of hers so we headed home for what I thought would be a good long nap.

An hour’s worth of rest helped Janet a little and happy hour on our patio helped more. This was the first time we’ve sat outside in the sun at our new house and it felt really good. Janet didn’t want it to end but a cloud covered the sun just as it was time to get ready for church so with her seeming more like herself, off we went. Tonight’s service “was a good one” says Janet and she was able to follow along with Tim’s message. By the time we were most of the way through our sushi dinner after church, Janet was fading again. She didn’t eat as much as she usually does and wasn’t really initiating any conversation. Back at home it was time to try on the dress and the other clothes Janet got today. She was pleased with her dress but Heather and I are so so with it. What do you think?

Potential mother of the bride dress.

Potential mother of the bride dress.


Heather and I like the top.

Heather and I like the top.


By this time Janet was quite out of it and should have gone to bed but she wanted ice cream so she quietly enjoyed that before getting ready. There was a return of her toileting challenges from last week this evening and put me in a foul mood. I don’t understand how she can be so bright and with it most of the time then have lapses like this. I pray that tomorrow, Janet is refreshed, rejuvenated, positive and energetic.

Janet, A Success Story. April 10. #TSJ

I’m not sure how to start this post as Janet and I along with a few other Connect folks saw the movie Noah tonight and I’m still rather consumed by it. I didn’t meet up with Janet today until she and the others got to the movie theatre but I did call her at lunch time and she was quite excited to be outside at Beasley Park having a picnic with a bunch of Connect people. She also was excited to tell me she had done some walking from the breakfast table to somewhere she couldn’t name, I’m thinking the Den but it may have been further. Point is, she was excited to have done it.

Janet expressed all emotions except laughter during Noah and overall thought it was a good movie with a lot of parts she didn’t understand. I would concur and Janet and I had a good talk about it in the car and right up until bedtime and would love to hear from any of you as to what you thought of it. It was exciting to be able to take Janet to a movie and for her to sit through a long one like that. Her sitting was made more comfortable in that she was able to sit in a theatre seat after a difficult transfer that included negotiating a three inch step down to get to her seat. Popcorn and pop helped too of course.

Praying for a restful night of sleep tonight and for an energetic Janet tomorrow and also for Heather to arrive safely and on time.

Janet, A Success Story. April 9. #TSJ

I was a little concerned as I arrived at Connect this afternoon and saw a tired looking Janet sitting in the Standing Frame. We had planned on leaving early for SheLife so we could run an errand and not be rushed through dinner. Turns out Janet was just getting out of the Standing Frame, not into it, and she had tried to nap but just couldn’t do it so off we went and my concern was all for not as Janet had an excellent evening.

The first part of her day was pretty routine from what I could gather as she had done all the requisite exercises and worked on Speech with Mary Lou. When I asked about walking, Janet was quick to say she had not done any yet but was going to at SheLife. I was pleasantly surprised she remembered that and that she still wanted to do it. We arrived at the church a half hour early so Janet could have a bathroom break before attempting to walk to her table for the evening’s session. She thought I was going to make her walk from the bathroom but that’s probably in the 150 foot range and even I am not that mean to have her try that yet. Janet happily suggested starting from a set of doors about 80 feet from her table. It was still early so no one was around as she started out which gave her time to really get going without the distraction of people watching. Twenty minutes later Janet sat down at her table to loud applause and cheering from the whole room and Janet was visibly happy with herself. Along the way, she took some really good steps, corrected her direction well with lots of coaching from me, and only once let people distract her from what she was doing. It was an excellent public walking debut and Janet is truly excited about having done it as she even reported it to Chelsea upon our return to Connect. I think I’m more excited about Janet feeling great about accomplishing such a thing than I am about the feat itself. Exciting times.

Praying that Janet sleeps well tonight and has a productive Thursday.

Janet, A Success Story. April 8. #TSJ

I arrived at Connect this afternoon to a very tired looking Janet hanging out in the living room. She said she slept but it sure didn’t look like it. That didn’t stop her from making a nice salad and setting the dinner table at Chelsea’s request. You think she knew I was lining up some exercise for her?

At my suggestion earlier in the day Janet did some walking in addition to her regular gym stuff and after dinner tonight I was able to get her to walk farther than I anticipated. She made it from her room to the Den very nicely and didn’t complain once the whole way. Despite a lot of resistance we went to Games Night following the walk. Janet feared not knowing any of the answers to the “stupid” games played and said she would only go to watch. On the very first question, Janet piped up quickly with the correct answer and did so a number of times during the evening. According to her, even with that success, “it was not fun”.

The last few days have been great for Janet both physically and cognitively. Her walking, in my opinion is improving, her short term memory is getting better too and she almost always can tell me the day, date, month and year, a skill Dr. Miller was encouraging a few months ago and I think we can now say has been achieved. Janet had another blood test today checking her Dilantin levels and they came back fine. All these positives are helping to grow Janet’s confidence to the point where she says she’s going to try and walk the last part of the way to her table at SheLife tomorrow. Can’t wait.

Praying for a solid night of sleep and a positive Wednesday.

Janet, A Success Story. April 7. #TSJ

Janet went right back to work today at Connect with a morning walk from the dining area to her room. That’s the longest walk she’s been on, close to 80 feet, and she was, dare I say, excited about it when I called at lunch time. She repeated that distance this afternoon with me, going the other direction, and showing improvement in her balance and confidence. Very exciting.

That was for sure the highlight of the day but Janet was in a good mood and quite bright the whole time I was with her. She practiced some hand writing using a workbook Mary Lou gave her and is producing more consistent letters than before. After reading The Artisan Soul, which talks a lot about artistic freedom, it is hard for me to tell Janet to stay between the lines, but I think it’s best she does. Janet reluctantly agreed to a Standing Frame session after dinner. It had been a while since her last session partly because of the pain she was complaining of in her right leg. That seems to be diminishing as Jess was able to stretch Janet well this morning and I got no mentions of pain tonight. Fortunately the NCAA basketball championship was on while Janet was standing and that provided a nice distraction and a fun way for Janet to end a very hard working day.

Praying for lots of strength and a positive attitude for tomorrow.

Janet, A Success Story. April 6. #TSJ

Sunday started out well and ended really strong. Janet has bounced back from whatever was bothering her the last few days and by tonight was at her brightest ever it seemed.

I let her sleep in a little this morning then she got her water, meds and coffee all by herself while I showered. Usually I’m watching as she gets her breakfast but today I let her go on her own and she did fine. Our plan was to have pancakes and Janet helped me make the batter but the egg we used was from a carton that expired in February and we added too much milk so it was back to toast and peanut butter. Janet took part in the weekly Skype session with her mom and enjoyed that conversation.

The first walking attempt of the day was a good one and I continue to see improvement, especially in Janet’s ability to step with her right leg. The weather was nice enough to walk around and hangout outside for a little bit this afternoon and Janet helped me with some landscaping ideas before her nap. A half hour is better than nothing and Janet got up feeling pretty good and executed a really good walk from the bathroom to the dining table. She seems to be even gaining some speed although I’m not timing her yet.

Janet helped build a salad and we enjoyed a nice dinner with pretty amazing conversation lasting well into return to Connect time. After Janet’s surprise announcement yesterday that she wanted to share her story at SheLife I thought that would be it for amazing announcements for a while. Wrong. I helped Janet take some notes on what she wants to talk about and that lead to some very interesting comments and questions from Janet centred around what happened to her, why, how amazing it is that so many people have supported her along the way and how much she has improved. She’s finally accepting that truth and I was able to reinforce it today by showing her some old video of her 4B and Rehab days. Janet took it all in and really processed it well, asking very poignant questions without getting too emotional. A couple of hours later and Janet had a very clear picture of where she’s been and how she’s gotten to where she is today and I think it’ll stick with her now. She wants to meet Dr. Redekop and thank him for performing the surgery that gave her a chance and was intrigued by my stories of the incredible nurses at VGH ICU and would like to meet them too. I’m not sure if any of this is possible but we’ll try to make it happen. The hardest part of this journey for Janet to understand is why so many people stepped up and did so much to support her. She’s still lacking confidence but is immensely grateful to all of you for all you’ve done and I believe you’ll be hearing more about that from Janet herself soon.

Praying that Janet has a most excellent sleep and a productive Monday.

Janet, A Success Story. April 5. #TSJ

A much better day for Janet today in all areas. Only one toileting accident, some really good walking and good participation in the things we did today. I am somewhat relieved, especially in regards to the toileting thing and am still keeping an eye on her right leg. Janet didn’t complain of pain as much as yesterday and when I put her to bed tonight she said it felt fine. Cautious optimism.

Her walking was borderline exciting today as there were moments when she was pushing down nicely with the lower part of her right leg. A lot of the time she more or less drags it into position but a few times today there were strong and deliberate steps taken.

We managed a visit with John today finally. He has moved to a care home and is not too happy about it. This is a temporary stop while he waits for a room at the facility he’d like to be in. We pray that happens soon. Janet had a nice little chat with him at his dinner table and also with his table mate, a former pre school teacher from Ontario.

The highlight of the day in my opinion was when Janet “woke” from her afternoon nap, that was just a rest. She said that someone at SheLife said they would be having some of the ladies share their stories to the whole room and Janet “…would really like to tell my story”. She said a little of what she’d like to talk about and it was very sweet and insightful. I’ve prayed lots for her to be willing to share and am excited she may get an opportunity soon. The first step was to clarify what was said at SheLife so Janet emailed Heidi to find out. Who knows, maybe she’ll be writing this blog soon instead of me.

Praying that Janet has another great night of sleep so that she has energy and strength to keep on improving tomorrow.

Janet, A Success Story. April 4. #TSJ

Surprisingly, Janet was in bed when I got to Connect to take her to her eye doctor appointment just after lunch today. Her morning was busy but not overly so with a light workout in the gym that included stretching of her right leg. A good sign that the pain there may be subsiding. The rest of the time was routine except for a couple of toileting errors that Janet is upset about. She went pee a lot today which is unusual for her but isn’t to the abnormal range yet and there’s no indication of any other symptoms suggesting a problem anywhere. Hopefully tomorrow is drier. Despite falling asleep as soon as she hit the pillow last night, Janet feels like she woke up in the middle of the night and didn’t sleep well after that which is why she was trying to nap at 1pm today. There was no time for such nonsense then so up she got and off we went.

Our Optometrist gave Janet a very thorough exam and noted some improvement in Janet’s vision from a year ago. We agreed that most of the improvement is from Janet compensating for her right side impairment better and just being way more aware over all. Her eyes remain healthy with some physical improvement and the doctor noted Janet’s vastly improved reading skills. To help with that some more Janet is getting a pair of reading glasses so she hopefully won’t get frustrated as fast as she does now.

Janet was deserving of a nap when we got home and took advantage of the opportunity for two hours. We had planned on a date night tonight but I sensed that Janet wasn’t in top form and after some discussion we agreed to get some take out and stay home. She was worried about having to go to the bathroom a lot and her energy level could have been a lot higher. We both really enjoyed our meal from Hector’s Casa, our neighbourhood Mexican restaurant, and along with watching The Voice it made for an enjoyable evening. Janet got the place to herself for an hour as I had to run out to Connect to get her new meds that arrived late in the afternoon and she handled that just fine. At the end of the night Janet agreed to walk from the couch to the bathroom but got a few steps in then had to pee so that ended that. Tomorrow will be different.

Praying for Janet to regain control of her toileting, for the pain to leave her right leg and for her to be able to do lots of walking this weekend.