Month: August 2014

Janet, A Success Story. August 18. #TSJ

Monday is often a challenging day for Janet as she transitions back to “work” or “school” and this Monday was made harder by a cold that just won’t leave her alone. She says she was feeling OK this morning and had a decent time in the gym and on the stairs with Curtis. He ran her through her entire program and Janet said it was “hard but fine”. That took most of the morning and after a little post lunch sunshine time Janet called me and I could hear that cold in her voice and it didn’t sound good. A short nap was all she could manage and she was back in the sunshine when I arrived to hang out with her. We stayed out on the patio right through dinner as it was freezing cold inside. Janet ate well and admitted she hadn’t had much water up to that point and obediently downed a bunch. The food and drink helped a little bit but there was no way this was going to be an active evening.

We treated the prospect of a chill night as an opportunity to do some research on a family Christmas vacation. Since Janet and I downsized our house and the kids are pretty much settled into their lives all over the country, we’ve agreed to try and meet on neutral ground each year and celebrate together there. Where ever there ends up being. Janet and I have been tasked with searching Arizona for deals and we were able to do some of that tonight. It was hard for Janet to maintain her focus though and she spent most of the evening snuggled under her blankets while I showed her pictures and read descriptions of possible get away places. That was enough for her tonight and she welcomed eight o’clock med time so she could climb into bed for real. She lasted right through ten o’clock with me reading to her though and the symptoms she was showing earlier had subsided by the time I said goodnight.

Praying for a night of healing sleep for Janet so she can fully participate in her Tuesday.

Janet, A Success Story. August 17. #TSJ PB&L?

Since Janet complained that her “vacation” last week wasn’t relaxing enough for her I made sure that relaxing was the focus this weekend. It was good timing as Janet is still battling the little cold that Ethan left behind. Friday was probably the busiest day we had as we went out and ran a few errands after breakfast. First stop was shopping for a case for Janet’s iPhone so she can clip it to her pants. Since she rarely uses her wheelchair now she has no where to keep her phone. The first stop was successful and Janet had a good walk from the car into the store and an even longer one to a bathroom as we left. Its really nice to be able to take her out and not be in a huge hurry so she can walk everywhere that’s reasonable. Our next stop required the wheelchair as the store is just too big for Janet to do the whole thing. After that it was back to walking, this time on an uneven gravel surface which made for a good challenge that Janet didn’t enjoy but conquered none the less.

The rest of Friday, and the weekend for that matter, were very relaxed with lots of walking in the house, helping with meal prep and walks outside including a good one today about two hundred meters round trip. Janet finds it more difficult walking outside but is slowly gaining confidence and stamina. The sunny warm weather sure helps. I notice that with everything about Janet, especially her right arm now that the Botox has completely worn off. When she’s nice and warm her arm is very relaxed and flexible but if she’s the slightest bit cold the whole thing stiffens right up. Still hoping for that prescription to live in Hawaii or similar.

We got a very pleasant surprise on Friday when the host of CBC Radio’s afternoon show contacted us to see if we’d be willing to share our story on the air. She found the blog a few days ago and thinks our story will “touch” her audience. Janet and I agreed to go on the show and will be on live just after 5pm this Friday for about ten minutes. I’ll give you more details on how you can listen closer to the day.

With one goal out of the way I’ve been trying to get Janet to zero in on another. The reading is coming along and she showed little resistance to practicing this weekend and the improvement by today was noticeable as far as the speed with which she got through the book. Loading and unloading the dishwasher is going well but we haven’t started to learn how to start the thing yet. Same with the laundry, Janet can load and unload but hasn’t had enough practice pushing the buttons. Helping with meals is something Janet is more and more willing to do and I think operating the cooktop can be ticked off fairly quickly, we just need some cooler weather to inspire us to use it more. Today Janet shocked me with her lunch choice of a peanut butter and lettuce sandwich. She loved it, must be an Ontario thing.

PB & L? As long as she's happy.

PB & L? As long as she’s happy.


Praying for a good night of sleep for Janet that heals her cold and gives her lots of energy for a productive Monday..

Janet, A Success Story. August 14. #TSJ

Janet’s little cold didn’t keep her from working hard this morning with Tez. Again, the focus was on taking long strides, especially with the left leg. Janet did well and said herself that she can do it but its hard.

When I got to her room just before lunch, Janet was reading The Hallo- Wiener out loud and let me sit it on the last half. There is improvement for sure and with some help from a guiding pencil Janet did better seeing all the way to the right of each page. That continues to be her biggest impediment and I think she can overcome it with a lot of practice.

I took Janet grocery shopping with me today before going home for lunch. It was nice to have her in the store helping me decide on what to get and once home, she did a great job making herself a sandwich while standing at the island. I saw no sign of any balance issues but did catch her once with her feet way too close together. That was coming up the steps from the garage and she corrected herself right away as she knew she was off balance. Back in the kitchen to make dinner, Janet stood strong at the island again and helped a lot and is showing much greater stamina in doing so.

The rest of the night was relaxing as that’s Janet’s goal for the weekend and I want her to shake her cold completely before we do anything crazy. Praying for lots of sleep tonight and an exciting Friday.

Janet, A Success Story. August 13. #TSJ

After yesterday’s greatness, today was as expected and rather relaxing. Janet did her usual morning stuff including reading with Mary Lou which went well and Janet has now been charged with reading The Hallo-Wiener twice a day to keep improving. For the second day in a row Janet lost her balance enough to take a little fall. Both times she landed on her butt which thankfully now has more padding than the former Janet had. Both instances at least in part are the result of Janet having her feet too close together, something she struggles with during sit to stand procedures. She doesn’t seem overly concerned by these falls and maybe even has become more body aware. I saw her really focussing on keeping her feet apart tonight without prompting.

Not surprisingly Janet has picked up a little bit of a cold that Ethan shared with her this past weekend. No big deal but enough to justify a relaxing evening. Chelsea had previously planned to watch My Fair Lady with Janet tonight and the timing ended up perfect. Janet enjoyed the movie and getting her nails done while not having to do much of anything but sing along to most of the songs. The words weren’t too familiar to her but the tunes definitely were.

Praying for a deep and healing sleep tonight and a healthy Thursday.

Janet, A Success Story. August 12. #TSJ Goaaal!

A very matter of fact Janet called me this afternoon to tell me she had “done the steps with Tez and he said it was fine.” Translation, Janet has officially achieved her first “get out of Connect” goal! I can’t explain her lack of enthusiasm and satisfaction, maybe she realizes its just the first of eight goals she set for herself. That would be her thinking only, as everyone around her has been praising the accomplishment.

Tez worked with Janet for quite a while this morning and will do so each Tuesday and Thursday for the foreseeable future. They will be working on improving Janet’s stride and walking speed. Janet admitted she was pretty tired from the Tez work and needed a rest so I was surprised to find her in the living room when I got to Connect. She really could have used more of a rest as she was a little grumpy most of the evening but agreed to demonstrate her stair climbing for you on her way to Games Night. This was her first attempt at all nineteen steps as she chose to go up them all instead of going up then down ten. Janet is a little scared of the down part still so I let her choose tonight.


Its difficult to say what the next goal to be achieved will be but some progress was made on the reading one tonight. Janet emailed the preschool she used to work at to see if she would be allowed to read to the kids near Halloween time. The response came within an hour and her former boss is all for it. We hope to meet to chat about it soon.

Praying for a long night of sleep that provided lots of energy for a fun Wednesday.

Janet, A Success Story. August 11. #TSJ Overachieving

Attitude is everything and Janet had a good one today. As I drove Brittney and Ethan back to New Westminster Janet called me to say she had just done her stair climbing with Curtis and that she went up and down TEN steps! She seemed genuinely pleased with herself and she should be, her goal was three steps set only a couple of weeks ago and already she’s at ten. High five! After the call, Brittney said Janet sounded good on the phone and she’s right. I didn’t really notice it at first but there was a much more confident tone and lots of volume to her voice and she carried the conversation well.

It wasn’t until six o’clock that I made it out to Connect and Janet was sitting out on the patio waiting for me with a big smile and a fist pump. Fortunately for me, her dinner hadn’t been served yet so we had time to visit before dining together. Janet’s confidence level stayed high all evening which enabled her to engage in good conversation with the other residents as well as the staff. She dictated some emails and discussed in depth our weekend as grandparents. It almost seems like she’s reached another level and it will be interesting to see if the trend continues.

Thank you to those of you that prayed for our friend Gary. He made it through the surgery and will be in ICU “a bit longer than usual” so keep praying please.

Praying that Janet gets a good night of sleep and is able to officially check off her stair climbing goal tomorrow.

Janet, A Success Story. August 10. #TSJ No Relaxing Here

Return trips to Connect have often been difficult and unhappy for Janet and tonight’s was near the top of the list in unhappiness. There was no crying or pouting or complaining just a clear stating of the fact that Janet feels like her “vacation, was not very relaxing”. She’s right and that was never the intention. I think it all boils down to nine days going by too quickly and a little bit of Janet forgetting some of the things she did. We had a good talk about it all and I was able to leave her smiling and seemingly content. She has a chance to officially achieve one of her goals this week and I think she’s looking forward to doing that.

The final phase of Janet’s “vacation” started Thursday as we said so long to my mom and hello to Brittney and Ethan.

Not too sure is he?

Not too sure is he?


We had no idea what to expect from this adventure and were impressed at how well Ethan travelled from New Westminster to Kelowna. Janet did too but that is becoming old news. Overall, our weekend went well and by the end of the day today Janet found a way to connect with Ethan a little more. You could probably guess it was through reading and teaching but even Janet was surprised when she realized she was using an App with Ethan that I used with her during her first year at Connect. Its a word association game that Janet now knows and Ethan is improving on.
EthanJanetHallowiener
Teacher at work.

Teacher at work.


The rest of the weekend Janet was pretty much the innocent bystander, she didn’t want to swim when we went to the pool but enjoyed watching Ethan and noted his improvement after day two. We spent a fair bit of time at various beaches and Janet enjoyed watching the goings on there, I just wish she could participate more.

With a two year old and a dog in the house our at home routine became a little chaotic at times so Janet got waited on more than usual and there was no protesting from her on that one. She still did well getting her breakfasts, it was lunch and dinner that lacked involvement. Her walking was great and even Janet commented she’s getting better at coming up the steps from the garage.

All in all it was a positive weekend and a productive if not relaxing time away from Connect for Janet. Praying for a restful night of sleep and an energetic Monday for Janet.

PS. Tomorrow, (Monday), our friend Gary goes in for open heart surgery which is scheduled for 1:45pm. Please keep him, Barb and the medical team in your prayers.

Janet, A Success Story. August 6. #TSJ Victoria

The last two days have been very full ones for Janet. Tuesday was travel day, as we drove to Nanaimo fearing we were leaving the sun and warmth behind. Turned out if followed us and we’ve enjoyed beautiful weather the whole time. Janet handled the five hour drive to West Vancouver very well, staying awake the whole time and requesting pee stops without prompting. I got a little nervous on one occasion when Janet asked as we were just motoring past a rest stop and I knew there wasn’t another for at least twenty minutes. She made it though. Trooper.

We had planned on being at Annette’s house in West Van around 1:30 but after leaving late, stopping for bathroom breaks and getting stuck in a traffic backlog from an accident it was three by the time we arrived. Annette presented us with a beautiful lunch on her nice sunny deck and Janet and I enjoyed a good visit before enduring the ferry ride to Nanaimo.

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Since Janet had been sitting for the bulk of the day I made sure she walked as much as possible on the ferry. Once we got to our seats the wheelchair was parked and Janet made a couple trips to the bathroom as well as one long excursion to find a warmer seating area. She did really well considering the number of people she had to maneuver around and the unfamiliar territory she was in. Janet said she was nervous about it but by the end of the ride felt much better about it. In fact she didn’t use her wheelchair at all going back to the car to disembark. Once at mom’s, Janet was happy to enjoy a drink on the patio watching the setting sun before calling it a night.

Wednesday morning came really fast as Janet didn’t sleep well and was up by seven. That was fine though as we were able to take our time getting dressed and having breakfast and figuring out what to do. We settled on driving to Victoria to visit The Butchart Gardens, something my mom hasn’t been to in like forty years, me in twenty eight years and Janet never. It was a beautiful day to be there and a very tired Janet managed to enjoy it and even walk a few times during our visit. Even though Janet was super tired she agreed to go to Victoria Inner Harbour for a quick walk about. It’s gorgeous there and we couldn’t have picked a nicer day to do that.

Showing great stamina and a healthy appetite Janet was all in for a fish taco dinner at Pennys Palapa, a funky little barge on the water right outside from my mom’s building.

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I was shocked Janet cleaned her plate but not surprised she still had room for an ice cream cone after. The fact it was Tiger flavour helped a lot.

So ends a very busy day with a prayer that Janet has a long and restful night of sleep and that we have a safe trip home tomorrow with Brittney and Ethan.

PS. Janet and I ask that you keep our friends Barb and Gary in your prayers over the next few days. Gary is scheduled for open heart surgery at KGH the morning of Monday August 11th.

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Janet, A Success Story. August 4. #TSJ Swimming Video

It’s been a fun and active start to Janet’s mid summer break from Connect. Laurel and Raj were here Friday night till Monday morning and provided Janet with some meaningful and exciting family time. We all walked around the Farmer’s Market Saturday morning then stopped by to say hi to John. Janet is always quite proud to introduce her family to others and John was very pleased to have a larger audience to regale with his stories. It took a little convincing but we got Janet into the pool and you can see from this video, she hasn’t lost any strokes at all.


We arrived early to church on Saturday as I wanted Janet to walk all the way in on her own. Wouldn’t you figure, she walked so fast the whole way we had tons of time to spare. Ya just never know. Sunday was a day at the beach, literally. Janet was happy to sit in the sun and watch Laurel, Raj and I make our first attempts at Stand Up Paddle Boarding. We all did impressively well I must say. After a nap at home we walked back to the beach area for a nice dinner at Smack Dab followed by the now requisite stop at Menchies for dessert.
Summer Yummies

Summer Yummies


The good-byes this morning were not as teary as in the past and Janet and I had a productive day preparing for our trip to Nanaimo tomorrow. I even got Janet in the pool again and we are getting steadily better at entering and exiting.

These first few days have been quite vacation like for Janet with today being an exception as I put her to work with me around the house. Since she is using her wheelchair less and less we rearranged the kitchen so that the things she needs for breakfast are reachable for her when standing. She did some walk throughs of the new set up today with the first real attempt coming in the morning. I’m confidant she can do this.

Praying for a great night of sleep and a safe drive and ferry trip to Nanaimo.

Post dinner selfie

Post dinner selfie

Stand Up Paddle Boarding sure is fun to watch.

Stand Up Paddle Boarding sure is fun to watch.

See what I mean.

See what I mean.

Almost looks like he knows what he's doing.

Almost looks like he knows what he’s doing.